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  • Missy, what can I do to really help you? We have all been there at one time or another and in varying degrees. hugs to you
    Honey, I am so sorry. I've been there and have walked in your shoes. Some days I still do. My PALS is my husband (Big Daddy). He was absolutely awful for awhile after being diagnosed. He was usually pretty passive but this really brought out the aggressive ass in him. It will get better. I'm so sorry. I'll be praying for you every day. Let me know if you would like to keep in touch in order to have an outlet. I HATE it when people tell me to hang in there. so I won't say that. I will be thinking of you. TAKE CARE OF YOURSELF FIRST.
    Missy, I can always send out the MONKEY'S if it gets tooooo awful! lol hugs to you
    Hi Missy All is good here, a busy weekend. I will try to call back soon. HUGS Lori
    I just went to the bathroom and cried till the worst of the tears are cried out, I came out and am able to go on again. I am finding I need those moments of hard crying. I cannot imagine how it must be for you and Terry when he is so young and with children. I cannot imagine the pain you are going through. My husband will be 80 in December and we do not have young children. It is very hard seeing him suffer. I am glad you have laughter. It is so important with teenagers. Take care. I pray for you.
    Thanks for the notes, Missy. I just got off the phone with Beth, she is coming by to see us this afternoon. I do agree with you, I want to stay ahead in this and be prepared with whatever Phil needs. Things have progressed in the last month must faster than the previous 1 1/2 years since we started noticing the speech problems. So, it is scary. I thought Phil had to stop working before he can apply for SSDI. Next week I will begin the prep on future items. Up until this week we were still trying to find something else Phil could have other than ALS. Now we are girding up our loins for the fight. Thanks Missy, we should talk on the phone or meet for lunch sometime -- even include the other ladies of husbands with ALS. I have a friend whose boyfriend has ALS and we have been discussing this for a month or so also. It helps to talk to others who can relate.
    The minimum with an ALS diagnosis is 30%. If he has any symptoms that will increase the percentage. It will be based on the results of the Compensation and Pension (C&P) exam the VA will schedule. What they may do is get the 30% immediately then do a C&P and make the increase retroactive. Discuss it with your PVA rep that's why they are there. Also ask about Special Monthly Compensation (SMC) which can get payments to the vet to over $7k/month as the disease progresses.
    Terry was officially diagnosed with ALS this morning. I'm picking up the letter of diagnosis on Monday morning and headed over to the PVA office.
    Hi What the VA does is incredible. For some reason, if you have served in the military, the chance of getting ALS is 2 times greater than if not. They gave ALS a blanket coverage, never been done before. If we did not have this coverage, I do not know how we would have survived this long. Email me at and give me your # or I wlll give you my #. If you know what you are doing, you can get retroactive payments. I want to help. HUGS Lori
    Hi Add this to his thoughts. Education benefits for the kids, Medical insurance for every one. Prescriptions at no cost, A wheelchair equipped van, and the list goes on and on.
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