Minnie

Hello everyone! I have been reading posts for over a year now, but this is the first time I've posted a message. I'm the mother of a 33 year old son who was diagnosed with ALS a year ago. He lives in another state from us, has a wife and 3 small children. I am desperately needing support from other mothers in the same situation. The grief we have been going through is overwhelming and we are at a loss what we can do for him. We are both putting in for the family leave act so one of us can spend every other week with him. He's always been such a great kid and is the most thoughtful, sensitive, and caring person I've ever known. He's way too young to have this horrible disease. I have trouble understanding why there is no medicine to at least turn this into a chronic condition like MS. Any Moms out there? Thanks for listening!