Recent content by mimipgm

  1. M

    Discomfort with ALS

    Thank you for your response. Yes, we have had both a PT and an OT coming 2-3 times per week, but did not seem to be doing her any good. She would be so tired when they were there that she couldn't sleep at night from the soreness and discomfort. Her doctor told her she didn't think it was...
  2. M

    Discomfort with ALS

    My mother was diagnosed with ALZ in Sept, 2011 and since that time, she has gone down dramatically and according to her doctors, "progressed more rapidly" than they had ever seen. One of her doctors told us that there was no pain with ALS, and another one said there would be minimal pain if...
  3. M

    Hi, Kaye! My mother went to Vanderbilt two different times and neither time was nothing less...

    Hi, Kaye! My mother went to Vanderbilt two different times and neither time was nothing less than a nightmare. We all found those doctors to be very indifferent about her condition the first time, and then the second time, the doctor was extremely aloof and to the point of being rude. Her...
  4. M

    Is it normal for ALS patients to have personality changes?

    My dad walked me out to my car and helped me get my suitcase and other items in. We were both crying and she was looking out the window, so our talk was very brief. She listens to EVERYTHING anyone says and comments on it. If he is on the phone and tells anyone that calls how she is doing...
  5. M

    Is it normal for ALS patients to have personality changes?

    I am so confused. hurt and honestly, a bit angry. I have been going down on the weekends (120 miles) to stay with my mother to give other family members a break. This weekend, it seemed like I could not do anything at all to make her happy. She seemed mad at the world and was so hateful. She...
  6. M

    coping and watching family members die

    As I watch my mother go down quickly, I know each day she has will more than likely be the best one she will ever have given the cruelty of this disease. I have gone to support groups, counseling, talked to professionals, friends and neighbors. Then I decided this situation was much bigger...
  7. M

    Sooo Frustrated!

    My mother was diagnosed with ALS in September. She was always so active and rarely was there a day that went by that she didn't take food for someone sick, send out cards to people, check on neighbors that she hadn't seen out and about in a while. Although she has taken care of hundreds of...
  8. M

    First visit as a registered member

    My mother is 78 years old and has been the picture of health up to this point. We are so confused with this aggressive progress. Her neurologist is baffled as well. Do you think she has had ALS much longer than we thought and the symptoms were not severe enough to know?
  9. M

    New? Introduce Yourself - Say Hello

    Re: Our Friendly Neighborhood watch This is my first time to post also. I have so many questions and concerns and I am hopeful that interacting with others experiencing these issues will be helpful to me. My first question is why these disease seems to be so aggressive? My mother has gone from...
  10. M

    First visit as a registered member

    This is my first time to post also. I have so many questions and concerns and I am hopeful that interacting with others experiencing these issues will be helpful to me. My first question is why these disease seems to be so aggressive? My mother has gone from walking, talking and functioning...
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