Recent content by Mike001

Hi, unfortunately not. No muscle or nerve biopsy

Hi Kim, thank you for your reply. It’s just to have muscle atrophy, fasciculations, and in the way it’s progressed, I can’t find any other condition or cause that it could possibly be but I’m all for it being something else, I really am. About the lumbar puncture, it’s one thing a few people...

Hi again, the last neurologist that I went to was a neuromuscular specialist that specialises in MND and the leading one in Wales, and he said he doesn’t think it’s ALS, but he said until everything else is ruled out, he won’t say it’s probable. But then when I asked what else it could be and...

Ahh thank you for that, I really appreciate it! It really is a complicated situation and not one diagnosis seems to fit the bill, that’s why the last neurologist and my GP are scratching their heads. I just want closure and for my family, so they have answers and I can somewhat rest knowing my...

I hope all are as well as they can be and I’m sorry I’m advance for the long post. It’s been a while and symptoms have just kept on progressing, thankfully slowly, but it’s been a horrific time being in limbo for so long and still left with no answers whilst progressing. To quickly summarise, it...

Thank you for replying. Some of the picture are form 2015 and some are now to show the difference. In my right leg there's no definition, its just like a bag of fluid it feels like now. I really do appreciate you messaging back and my apologies for posting... I'm just getting no help from anyone...

Hi all, i've posted a few time and i've got nobody else to turn to for help or guidance. I've tried to go private for further testing instead of thought the NHS, but it's the same neurologist i've seen previously. I've switched GP's now as well. GP says I need to go to a Neuromuscular...

Thank you for replying Nikki, I understand what you mean. Well my GP was the one that give me the CK results and he said they were high but could be for a number of reasons and he also said that in MND they would be a lot higher. I suffer bad with depression and been housebound for a long time...

Does anybody know about gene testing and if that would be necessary? I forgot to mention I had 903 on my CK blood results but I don't know what's high and what's not. Went back to my DR's today and they said they have no record of my referral to the new neurologist :( So I'm going to have to...