Recent content by Mike in Maine

  1. Mike in Maine

    You still around old man Mike

    You still around old man Mike
  2. Mike in Maine

    Couldn't breath ended up in the ER

    As most of you know, I have UNM ALS and it is very slow progressing, again as most of you know one of the major symptoms of UMN ALS is spasticity. Well I have always had very bad spasticity, have a baclofen pump (385 micrograms day) works pretty well on my lower body, but does very little for my...
  3. Mike in Maine

    Hi Had a great holidays with the kid and grandkids here, the house was crazy. Congrats on the...

    Hi Had a great holidays with the kid and grandkids here, the house was crazy. Congrats on the dog, rescue dogs are the best, both of mine are. Understand completely what you are saying about walking the dogs in the rain. Not sure what is worse the cold for the rain/snow. Happy New Year Mike
  4. Mike in Maine

    Sleep Study last night

    Got the Bipap has made a world of difference in my sleep, feel much better in the AM and have more energy during the day. Have a full mask and have found that the system is not that hard to get use too. Now if I can get rid of the leg spasms at night I may make though the night without waking...
  5. Mike in Maine

    Sad story

    So sorry to read your post. Sorry for you and what your daughter is missing and going to miss. If I was you I'd text her that you love her and that your love is unconditional and that someday she will come to realize what a great loss it was for both her and you to not spend time together...
  6. Mike in Maine

    Clinic visit

    Vincent, I was surprised when mine recommended I'm still getting around good., but they said it would help cut down on being tried and the falls. Haven't done it yet, not. In a house that a PWC would work, building a home with wider hallways and doors. So I'm waiting a few months. Also I...
  7. Mike in Maine

    Need a few suggestions

    All, I know the title is misleading need some help here. Music is my escape and my downloads on my I-Pod (yes I still use one) and phone are getting stale. I listen to mostly classic rock (60's and 70's) some modern country cause it sounds just like what we used to call Southern Rock back in...
  8. Mike in Maine

    ALS Treatment in India

    Sorry sir but I can't do that, ALS is so different with each person what I take for meds may hurt or do harm to your wife Mike
  9. Mike in Maine

    Sleep Study last night

    Thanks all for the reply's Mike
  10. Mike in Maine

    ALS Treatment in India

    One of my Doctors from Columbia University(he works with the VA in NYC) is or just left India teaching them about what we do here in the States for treating ALS. I see him on 21Dec for an EMG and in all the stress I'll do my best to ask him about where to go. I'll write down right now Mike
  11. Mike in Maine

    Sleep Study last night

    Hi All Had a sleep study last night, complete torture. Getting a BiPap for use at night. Do any of you use one? Do you get use to it? Thanks Mike P.S. Mark they said no more breads so the new goat is out. mess's with the seal. New ugliest dude on block can't cover it up anymore
  12. Mike in Maine

    PALS roll call Wednesdays ( or whenever)

    Still here, sleep study last night. torture Mike
  13. Mike in Maine

    Very Severe Cramps

    I posted this in General discussions other day. I had killer cramps and this has pretty much wiped them out I was talking to my VA Doc about cramps I had been having and how painful they were. He recommended this drug that he said was in phase 3 testing to relieve cramps in ALS patients, he...
  14. Mike in Maine

    Mexiletine HCL for cramps

    I was talking to my VA Doc about cramps I had been having and how painful they were. He recommended this drug that he said was in phase 3 testing to relieve cramps in ALS patients, he put me on a low dose and it has really worked. Most of my cramping is gone and I have had little or no side...
  15. Mike in Maine

    Cold feet

    My feet cold most time and I'm still getting around pretty good. I have a Doctor App. on 21 Dec if I remember I'll ask him. Mike
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