Recent content by miejajoy

  1. M

    Could this be?

    Thank you for your guidance and for sharing your knowledge and your thoughts.
  2. M

    Could this be?

    Thank you. I do not question whether the EMG was “wrong”. I’m sorry if I wasn’t clear about that. I was only asking if it would cover the bulbar region since I wasn’t sure if they tested that area and I am challenged with disabling symptoms in my bulbar area. I fully agree with your...
  3. M

    Could this be?

    Thank you so much. I will discuss it again with my doctor. I really do need some relief soon.
  4. M

    Could this be?

    My posts were to seek guidance and ask questions. Yes, I have been unwell since 2019 but my bulbar issues only came to the forefront last year, along with my progressive muscle and motor skills symptoms. Please accept my sincere apologies.
  5. M

    Could this be?

    My PCP does think it is spasticity and has discussed baclofen. I am sensitive to meds and when taking Flexaril a couple of years back for an injury I had a bad reaction so we have hesitated to try it. I will be starting glycopyrolate for the excess saliva which will hopefully also help with the...
  6. M

    Could this be?

    Thank you so much. I really do think it is all related and not separate causes, but honestly I don’t know what to think anymore. I am on their cancellation list and also call often to check, but have had no luck. I feel like, based on my severe symptoms, something should have shown up…even...
  7. M

    Could this be?

    Hi All, I am posting my EMG as I have it now. I understand that it is normal and for that I am grateful as it gives me hope. My bulbar symptoms are constant and debilitating and I don’t think the EMG tested the area for that. Am I mistaken? How can they say no evidence of the area wasn’t tested...
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    334118F6-3BEB-466A-BA33-DB1774FA558A.jpeg

  9. D04D126A-D317-473C-A0C1-3920EC8B2BF2.jpeg

    D04D126A-D317-473C-A0C1-3920EC8B2BF2.jpeg

  10. 1730ACA0-499F-491B-ADA8-1F6750291ED1.jpeg

    1730ACA0-499F-491B-ADA8-1F6750291ED1.jpeg

  11. M

    Could this be?

    That’s good to hear, thank you. Are you from Mass? Boston area? Hoping maybe to have things figured out before then. Trying to remain positive. 🤞😊
  12. M

    Could this be?

    I am seeing Dr. Reza Seyedsedjadi…spelling is probably wrong. 😊🤷🏻‍♀️
  13. M

    Could this be?

    I will look for and try to attach EMG report. And yes my appt is at MGH. Not limited by insurance… My whole body is affected by the stiffness and what can be described as severe muscle tightness. It makes walking uncomfortable as well as moving my arms…especially right hand and wrist. It’s in...
  14. M

    Could this be?

    Thank you, also, for my previous thread! 😊
  15. M

    Could this be?

    Well, my PCP ordered the most recent EMG due to my worsening symptoms. She is very concerned, especially about bulbar issues,and put in a referral to have me seen by a neuromuscular specialist. That appt isn’t until July 31st which seems so far away given my progressive debilitating symptoms...
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