Recent content by MICHELLE40f

this may sound crazy,but...... I have been drinking coffee like a fish since about 2 years after i started getting "sick" so altogether about 5 years,well i have honestly thought at times that maybe it has slowed my progression,because its the only thing i can link to it, sorry i suck with...

how wonderful! amazing people on this board!

hi you are quite welcome sral,was just a friendly reminder that we all suffer in different ways. I sure hope your mom has as little suffering as possible,you seem like a really great daughter!{{{{{{hugs}}}}}} Michelle:-D

cindy...... I hope you find answers soon!It doesnt seem like ALS to me,which lol I dont claim to know much,but something I do know is that it doesnt sound to me like you are doing so great,some people seem to forget that other illnesses that affect peoples lives with weakness,loss of...

oops.. forgot to mention,that my actual diagnoses is HSP,but alot of similar symptoms,and friendly people here,so i post here:-D

Judith I get bouts of vertigo like this.......hate it.......now i am almost always dizzy headed,but i do have low blood pressure always.....the vertigo is sooo different ,no fun,i hope you get rid of it soon!{{{{{{{hugs}}}}}}} Michelle

sral Its MS that caroline is referring to,im not sure about optic neuritis with MG,but I'm sure someone on here could tell ya,or you could google it..i like to google:?:lol God bless.....michelle

thanks for info........ i have read the myelin levels before and mine is definitely out of the normal range ,it shouldnt be over 0.0-0.3 at the very most. anyway i was just curious if anyone else with our symptoms had the high myelin level also....thanks again

When i first started getting "sick" they thought i had ms(for several years actually) well my mris were normal and i had no "o" bands in csf but i did have a .6 level of myelin,i have always wondered about this,anyone else? caroline how bout you? lol i think you were the other person who said...

hi Larry I have a diagnoses of hereditary spastic paraplegia,has any neuro ever mentioned this one to you? You dont have to have an obvious "hereditary pattern" to have this,matter of fact some people are diagnosed with "apparently sporadic spastic paraplegia".....but sometimes i wonder if mine...

hey....... what is the dynamic AFO? I havent gotten any yet,is it fitted by a doc. or can you just buy them? thanks,Michelle:-D

hi I hope you find a good knee brace,I am trying to decide which AFOS I need at the moment. Gracie.....babinski sign is when the doctor scrapes the sole of ya foot and the big toe goes up(instead of down) and the other toes fan out.:)

wow.......... This forum is here for support,right? I have used short cuts b4,I dont have a problem with it.:) lol God bless all........

sral...... yes,yes,yes and yes. lol

geo i cant ever seem to get on the yahoo sites,I cant figure it out. goofy me:-?