Ugh! The ALS doc has ordered a Muscle biopsy. He thinks my weakness sounds more like Mitochondria. I do not remember any pain in that foot. It did go numb before the foot drop. When I visited him I said "so the Myotonic discharges ruled out ALS...he said mmm not necessarily. I was took Xanax before the visit I was so nervous I kind of glossed it over.
Today I got my referral for the biopsy and the diagnostic codes included G12.21, ALS. So I guess ALS is not off the table. Fasciculations still all over my body (even when I thought I didn't have any the docs say they can feel them. I still have intercostal rib pains and breathing is just a bit more difficult. I am really praying that it is Mitochondrial Myopathy.
Today I got my referral for the biopsy and the diagnostic codes included G12.21, ALS. So I guess ALS is not off the table. Fasciculations still all over my body (even when I thought I didn't have any the docs say they can feel them. I still have intercostal rib pains and breathing is just a bit more difficult. I am really praying that it is Mitochondrial Myopathy.