Recent content by Micaela

  1. Micaela

    Loss of appetite and the chore of eating

    Hi, thank you for all the feedback. I just however talked to my nurse here in France and she is saying that she has other patients with feeding tube but that it takes 1 to 1 and 1/2 hours for 1 meal of 500ml to go through. Which means to me being hooked up to a bag for at least 3 hours a day...
  2. Micaela

    Loss of appetite and the chore of eating

    Thank you for your reply and that of the other members all pointing in the same direction. I forgot to mention that i am an American living in France but being cared for both at Mass General and in Paris. I am soon to be given Edaravone treatment and will ask about the feeding tube at this time...
  3. Micaela

    Loss of appetite and the chore of eating

    Thank you for your reply Karen I was wondering concerning this kind of system: do you have intestinal problems? Gas, constipation etc? Do you also eat ? Is it a time consuming task? Thank you
  4. Micaela

    Loss of appetite and the chore of eating

    Hello to all, I am 66 years old and I have been diagnosed with upper & lower ALS in July 2019. I have problems with my voice, swallowing, weak hands, twitching and cramps. I have no respiratory issues or limb problems. Indo feel exhausted most of the time, however. Just the thought of the next...
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