Recent content by MF4129

  1. M

    Shortness of breath

    Thanks for your response. I will ask her to use her trilogy more.
  2. M

    Shortness of breath

    Hi my mom has bulbar ALS diagnosed 12/2022. She still walks with a walker but can no longer eat or talk. Recently she has felt more SOB and has discussed this with her pulmonologist and als provider, however the SOB is causing her severe anxiety (she went to the ER recently for this). Her pulse...
  3. M

    question about potential bulbar onset

    My mom has bulbar als. Diagnosed this past winter. She noticed that the left side of her tongue/face were affected 1st and her right side felt fine. Her 1st symptoms were slurred speech. It didn’t happen all the time initially, just occasionally. Then it happened more frequently. Her voice also...
  4. M

    Computer recommendations

    Thanks for the responses. She has used an iPad and apple laptop previously. She can still talk but only for short periods.
  5. M

    Computer recommendations

    My mom has bulbar ALS and needs a new computer. Right now she has use of her hands but they are quite shaky. Can anyone give me recommendations on a good computer model for someone with ALS? Thank you for your help.
  6. M

    issue with my jaw

    My mother has bulbar als and has had issues with jaw pain but she hasn’t mentioned her teeth not sitting right in her mouth (as of yet). I would check with your doctor on this.
  7. M

    Tremor in ALS?

    My mother with bulbar als has had what doctors have said is an essential tremor for several years but this “tremor” has worsened significantly since her diagnosis of als. Both her hands shake to the point that she has trouble writing. I am wondering if others with als experience this...
  8. M

    My concerns were confirmed

    Hi Nikki. She has the equipment for voice banking so will hopefully start working on that soon. She is just so overwhelmed right now with the diagnosis and decisions she has to make. It’s been really difficult as I am sure everyone here knows.
  9. M

    My concerns were confirmed

    I initially posted back in September under the “could this be als” category regarding concerns I had about my mom and her slurred speech. Unfortunately, my concerns were confirmed (after seeing several neurologists- some who did not seem well versed in MND) and my mother has been diagnosed with...
  10. M

    Concerned daughter

    Thank you so much Nikki for taking the time to respond to my post. Do you happen to know if slurring in ALS improves with rest/sleep and then worsens through the day? ( I understand you may not know the answer to this, but thought I would check).
  11. M

    Concerned daughter

    Thank you in advance for taking the time to read my post and respond, I truly appreciate it. My mother in her mid 60’s began to notice slurring of her words in June. She speaks on the phone for her job and would notice as the day wore on her words would start to slur. My sister noticed this as...
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