Recent content by metronome

I have a good hospital bed, a physical therapist twice a week though I'd have to say that my ROM is pretty limited. The last nights have been better though, even if not perfect. My love has been visiting me and slept beside me for part of the night and that helped me sleep tight, partly. :)

Thanks Al, I'll discuss those with my doctor.

Thank you. As soon as the sun comes up those thoughts are practically gone and replaced by more rational thoughts. I am sad yet not despaired, I cry out of physical and emotional exhaustion not because I'm bitter. So anti-depressants are also out of the question for me.

I have familiar ALS with the C9ORF72 mutation. Progression is pretty quick, since being diagnosed in February 2017 the symptoms developed from not being able to lift my right foot to the current stage of not being able to walk or stand, not being able to lift my right arm and hand and the onset...

Hello y'all. My name is Ralph, I am the person with ALS wishmobbing talks about in the original post. The progression of my disease is quicker than a rat in the sewers. I am trying to cope as best as I can.