Recent content by Mellen

  1. M

    Thankful

    I am thankful to have found this forum. The concern you guys show for each other is an inspiration!
  2. M

    Husband with many ALS symptoms but no diagnosis

    Thank you. It is so helpful to be able to express my thoughts in a forum where people understand.
  3. M

    Husband with many ALS symptoms but no diagnosis

    Vince I admire and respect you. I have a new appreciation for the sufferers of this disease. I don't blame my husband for his denial. With ALS it is really impossible to get your mind around the global nature of the illness. I pray there will be a way to easily diagnose AND treat ALS!
  4. M

    Husband with many ALS symptoms but no diagnosis

    All I want is a diagnosis. I do realize the journey is long for most of those with this disorder. I am a nurse practitioner who now feels like an expert on neuromuscular diseases. Having never had a patient with this disorder I have read hundreds of pages of both academic and anecdotal...
  5. M

    Husband with many ALS symptoms but no diagnosis

    I remember you because CC would not give you the tracing results of your EMG. We could not get those either. Dr Tavee did the EMG but (by her admission) she didn't read the order and only did his L leg and L arm. He was ordered the full NMD protocol. We were about 100 miles away and had to turn...
  6. M

    Husband with many ALS symptoms but no diagnosis

    Who was your neurologist?
  7. M

    Husband with many ALS symptoms but no diagnosis

    You would have to know my steel willed husband who is in full blown denial to fully understand!
  8. M

    Husband with many ALS symptoms but no diagnosis

    Sorry I should have proofed this. I got a telephone call and some of the narrative is disjointed. I can't figure out how to edit it.
  9. M

    Husband with many ALS symptoms but no diagnosis

    My husband began experiencing some memory issues and executive functioning deficits, and drooling (not excess saliva) about 10 months ago (this is the only thing that has improved) we also noticed all over muscle wasting with worse wasting L leg, had cramps in his leg (worse at night) in the...
    • Mellen
    • Thread
    • als als symptoms arm clinic cramps cure diagnosis early emg fell foot frustrated helpful hours husband increase movement muscle muscle wasting muscles night no diagnosis saliva symptoms tests treatment twitching weakness
    • Replies: 16
    • Forum: Could this be ALS?
  10. M

    Help hubby age 31 just diagnosed .. I'm so lost

    Your honest post tore at my heart. I will be praying for you and your family
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