Recent content by meli

  1. M

    It has been almost 2 sad difficult years since posting here last. I don't know what to say... I...

    It has been almost 2 sad difficult years since posting here last. I don't know what to say... I wish at least I could share better news with you and everyone here, but still no closer to diagnosis... Thank you for all you insight...peace...
  2. M

    Hi Itr, your twitching, weakness, atrophy, sound like my story.I have not been here a while...

    Hi Itr, your twitching, weakness, atrophy, sound like my story.I have not been here a while, being in limbo hell, but I wonder if I have a myopathy/myositis, cause I've had supposidly normal emg/ncv and crp, but high c-reactive protein & positive lip biopsy inflammation for sjogrens.There is...
  3. M

    I hope this doesn't upset you, but as I've told you, I am going through the dark unknown myself...

    I hope this doesn't upset you, but as I've told you, I am going through the dark unknown myself full knowing that something is wrong. But all I can tell you is that these documentaries gave me some comfort and understanding, I hope it does the same for you and yours when you're ready to watch...
  4. M

    hi I read your posts and am so sorry for you both (everyone suffers).I am in my 30's too &...

    hi I read your posts and am so sorry for you both (everyone suffers).I am in my 30's too & undiagnosed, I hope for the best, I keep searching, I am in the land of the scared, lost, alone... I have mixed feelings about faith, after reading what people go through on this board. Recently a...
  5. M

    EMG for Ruling Out ALS

    hello everyone- This forum really scared me, is there no certainty even with normal EMGS? Anyone with personal experience please comment on this question posted on this ALS forum, this is really disturbing to me? :-(
  6. M

    Q: Spasticity, tightness, and CPK

    So abnormal EMG (needle) studies point to denervation/re-nervation in (mnd/als) and NCS/NCV point to "blank" in (what sort of diseases or conditions)? "Nerve conduction studies mostly exclude peripheral nerve problems, and things like carpal tunnel and Guillian-Barre." But what if a...
  7. M

    Q: Spasticity, tightness, and CPK

    TR- they were normal, but my body isn't. I guess I need more clarification in what an EMG (needle) points to vs what NCS (no needle) points to or point away from. I just want to understand. I keep reading that the needle portion EMG is the standard for looking at MND/als, but what is the NCS...
  8. M

    Q: Spasticity, tightness, and CPK

    tokah-Mostly., but, What is considered passive movement and which tests does the neuro do to see/diagnose spasticity? Tkanks.
  9. M

    Q: Spasticity, tightness, and CPK

    hi tonahfang- But why can't spasticity or tightness be differentiated by oneself. Shouldn't it be obvious when it's spasticity vs arthritis joint tightness for example? I'm just trying to understand how those two are different, because I have daily tightness in both hands, more on right, feel...
  10. M

    Q: Spasticity, tightness, and CPK

    hi mom-when I open and close my hands, my hands open and close in a um-smooth sort of manner and some of my finger joints feel tight upon opening and closing. No spasms, as in muscle spasms(if you mean like charlie horse). Just a tight/stiff sensation, even though I can open and close my hands.
  11. M

    Q: Spasticity, tightness, and CPK

    What about CPK and Adolase, anyone? I read mixed information, if denervation is there, wouldn't these be abnormal? If denervation is happening, muscle fibers are dying, therefore abnormal values? What other diseases cause denervation other than mnd/als?
  12. M

    Q: Spasticity, tightness, and CPK

    Hi- How does spasticity present itself, how does it feel? I'm trying to figure out if the tight sensation in my hands/fingers- not smooth movement when opening and closing fingers, is spasticity?
  13. M

    Q: Spasticity, tightness, and CPK

    Hello All: I have a couple questions to clarify: How does spasticity present itself in real life and how is it different from tightness? Would ALS/MND present with normal CPK & Aldolase if one already feels a loss of strength in limbs? I feel loss of strength in all limbs/hips, but my CPK and...
  14. M

    Normal EMGS- and weakness/tightness/pain

    But the neuro didn't call the MRI abnormal, in respect to it being MS...and no more was said after that MRI. So I have this weakness, making it hard to walk, & up and down stairs a lot, wobbly legs, and a sensation like my body weight has shifted to my heels(bottom of foot). If my leg...
  15. M

    Normal EMGS- and weakness/tightness/pain

    hi notme- the thing is, the neuro that ordered the MRI didn't say it was abnormal, although the radiologist didn't say either way. Is there anyone on this board that has symptoms like me and and MRI with the things mentioned on the MRi or have familiarity with MS presentations? I keep reading...
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