Recent content by melab

  1. M

    Musings on Pain and Fasciculations

    Dr. Wymer. If Gainesville. Saw Pulley for a while but the drive was long from orlando
  2. M

    Musings on Pain and Fasciculations

    Good thoughts Kevin. I saw 4 neuromuscular physicians in Florida. ALL of them refused to do emg's in the beginning because they said pain was not a symptom and my strength was good. Dr Oskarsson at Mayo even refused to see me again and recommended a psychiatrist. He even blocked me from seeing...
  3. M

    General Practitioner in Central Florida

    I have contacted many in the area. Most are not accepting new patients. And I have done the next door thing as well Unfortunately the closest ALS Neuro is gainesville Florida which is 1.5 hours away. and thank you.
  4. M

    General Practitioner in Central Florida

    HI. My neuro is about 1.5 hour away.
  5. M

    General Practitioner in Central Florida

    Hello. I live in Central Florida. lake county/Orange county area. I am struggling to find a general practitioner to see me. My Primary care has recently suggested I find a new physician as they are moving toward more high end services and they have categorized me as a "zebra" patient...
  6. M

    Hi there. are you happy with tx neurology? which Dr do you see we are considering relocating...

    Hi there. are you happy with tx neurology? which Dr do you see we are considering relocating back to Tx. Thanks!
  7. M

    Florida Clinics

    I have been to mayo, both univ of fl clinics and seen Dr laham. I live in orlando and currently go to Gainesville. Mayo was just a terrible experience for me and cost me about 6 moths delay in diagnosis under Dr oskarson. Dr wymer in Gainesville is very nurturing. So is laham in orlando
  8. M

    Florida Clinics

    Its laham. Latham
  9. M

    Florida Clinics

    Dr tawfig Latham is at orlando health in Ocoee. He's knowledgeable and they have a clinic
  10. M

    Florida Clinics

    What town in to are you in?
  11. M

    anyone know of support groups specifically for the newly diagnosed?

    I do not participate much on any of the forums. But I have experience almost no in person support from providers in the central Florida area at all. That said, I am willing to connect personally with anyone who would or is capable of connecting over the phone or even meeting in person to share...
  12. M

    Living will

    I went to my attorney to have my living will redone. I have a power of attorney. I have made the decision that at the time of my choosing I may decide to evoke vsed.... I want everything spelled out so my healthcare surrogate/ power of attorney doesn't have to do any thinking. Only follow my...
  13. M

    Orlando Fl Primary care physician referral

    Hello. Anyone in the Central Florida-Orlando area have a referral for a Primary care physician who can handle an ALS patient? I love my PCP but they are not equipped to handle an ALS patient. I am experiencing very quickly that the Central Florida area has little resources for assistance or...
  14. M

    Jacksonville Florida; UF Shands or Mayo ALS Clinic

    Yep shands does their own emg and responds promptly. Yes I too am very strong in the strength tests and in significant pain. Shands is very busy but the Dr actually calls me back personally.
  15. M

    Jacksonville Florida; UF Shands or Mayo ALS Clinic

    Very happy with Uf. Dr Pulley is caring and thorough. Went to mayo first. Not a good experience. The als specialist at mayo saw me in June. Said no als. He suggested maybe fibromyalgia. But gave no other avenues to explore. About a 2 months later after several calls to the neuro's team...
Back
Top