Recent content by meghen

Hi Alana, I just saw your post about herbal supplements and have been looking into the topic myself... I'm from Iowa but have been reading a lot about the benefits of CBD as well as THC in some cases. Please let me know if you'd be interested in some more information and I can share a couple of...

Thank you all so much for your input! Ed340hp - I think you are right and I feel like a cure (at least effective treatment) is right around the corner! As one of my newly made friends on FB says- 'stay strong, a cure is near.' :smile:

Thank you! :)

Thank you, Laurie! Can you help me understand how I may be of help to a Research & Development group as a non-pALS? I'm trying to figure out how I could most help anyone/everyone affected by ALS, as I've decided to turn my Fear of having ALS - into Fighting for others with ALS - in any way...

Nikki J. - I thought the same thing when I came across this information yesterday. I also noticed it states the light could prevent atrophy - aren't we past the point of atrophic?

Re: Dalhousie researchers activate muscles with light Since we last spoke (in August I believe) I have gotten deeply involved in advocating & fundraising for pALS, and need to make sure that my next push is focused on the correct petition and the correct receiving party. It is regarding...

Hey there - I tried posting an update on your Voice Banking thread but can't seem to get it through/approved?... I found a pretty sweet group of people on FaceBook called "ALS - Patient and Caregiver tips for every day living", and was provided with what I found to be quite helpful feedback on...

Janelle (Green Queen), I am so excited to share this with you!... https://www.modeltalker.org - I stumbled across an amazing group on FB called "ALS - Patient and Caregiver tips for every day living". I asked about voice banking and by far and above, Model Talker (FREE of charge) was most...

Mike, I so adore you.

I just looked at that gent's FB page (Olly25) and he seems legit. I downloaded the free app he suggested for Iphone/Apple products, called RecordMeNow. More info can also be found at RecordMeNow.org. I'm not familiar with the standard way of voice banking, but can certainly continue researching...

Hi Janelle, This guy is located in the UK but it sounds as though his goal is to help PALS with recording their voice and/or memories - in loving memory of his father who suffered from ALS. He posted this link a week or two ago and his name on here is Olly25. http://facebook.com/mndlegacy...

Laurie, Thank you SO MUCH for looking him up also, and for helping me see that he is not as bad as I'd been thinking! Thank you, thank you & I will definitely report back to let my friends here know the outcome of my visit.

Nikki J, you are a God send. I am copy/pasting your reply and will have my homework completed before my visit! I can't thank you enough for your help! THANK YOU! <3 (also donating and fundraising for ALS for the rest of my life - regardless of my personal outcome)

Hi Friends, My very long awaited neuro-visit is next Thursday (9/3/15) and I'm hoping you can help me prepare. I am seeing the neurologist my GP referred me to (Dr. Amro El Feki of Unity Point in Des Moines, IA) who does not specialize in ALS, and his one & only patient review is horrible...

right ON, Jim! I know I'm not supposed to say this, but THANK YOU for saying what needed to be said!