Recent content by Megan Dontain

  1. M

    What would YOU do?

    Cheryl, I have to agree with Becky. And since the heading of your thread was 'what would YOU do ' I really tried to put myself in your shoes..... If your husband is anything like mine, he is probably harboring a lot of guilt for having ALS in the first place. My husband hates to see me cry...
  2. M

    CALS needing tips from PALS

    lgelb, You are so sweet. Thank you for being truly kind. I was in the bathroom, last night trying to figure it out and I just started laughing. I'm sounding a little crazy I know, but it just struck me as funny that for the past 14 years I've been married to a contractor and never had to worry...
  3. M

    Travelbugg, I really do appreciate your input. I agree, we have enough to worry about without...

    Travelbugg, I really do appreciate your input. I agree, we have enough to worry about without stressing out every time we brush or wash our hair. I thought about taking a prenatal vitamin, but never crossed my mind to try the actual scalp treatment. Thank you, I try it out and let you know how...
  4. M

    New and unsure of what to do next?

    -Steve, Thank you so much for your response. It was really cool to get an actual PALS perspective that does what my husband does. My husband also loves to ride, I guess I should have stated that in my original post. He grew up riding BMX and racing, so it is a passion he's had his whole life. I...
  5. M

    Cheap, easy shower solution

    That is really neat! Unfortunately, my master bathroom is very narrow. I also don't have a drain anywhere on the floor (was on my hands and knees checking last night lol) for water. Soooo....that's not gonna work for us. I was seriously contemplating just going in there with a hammer and start...
  6. M

    CALS needing tips from PALS

    -@Tillie, is that something I would ask his Neuro for a referral for? Occupational Therapist ? -@Doug, thanks for the pic. That looks perfect and totally accommodating. I hope to get something going like that for my husband. I will contact our local ALSA and see what they think. -@Nuts, I'm on...
  7. M

    CALS needing tips from PALS

    Hello, This is my first time venturing out of the Care givers forum, I hope I picked the right place. My husband has limb onset ALS that started in his left leg. He has severe foot drop and wears an AFO and walk with the aid of a cane. We are just now starting the PWC evaluation process...
  8. M

    Hair loss-Dr says stress

    -@Nuts , I told him " are you giving me chemo while I'm sleeping " and he laughed and said "No, you're just a stress trip, even before ALS!"
  9. M

    New and unsure of what to do next?

    Thanks for your input everyone! Now I feel like I have some ammo for our next showdown over this topic, or least some very valid points, which I didn't have before. So, thank you again. -@4ltoml, I'm not sure what a recumbent bike is? I'll have to Google that. Sounds interesting. Megan
  10. M

    New and unsure of what to do next?

    You guys it the nail on the head! Harley is exactly what he wants. Scares the sh*t out of me. Our fights are so ridiculous right now, I'm begging him for a wheelchair and he's trying to convince me to let him buy a Harley! Never saw this coming... Megan
  11. M

    Hair loss-Dr says stress

    Hello, So for about three months now my hair has been steadily falling out. Yes, this is a very girly, very vain topic, I know. I'm really starting to freak out now because I've lost about a third of my hair! When I shower it comes out in small handfuls, enough that I have to keep the Draino...
  12. M

    need some encouragement

    Cheryl, I too am new to the forum and have no idea how to private message? I guess we just have to wait like Tillie said and eventually we will earn the privilege. If you don't mind my asking, how old are you and your husband? My husband and I seem to be one of the few younger families affected...
  13. M

    New and unsure of what to do next?

    -@Nuts, I literally laughed out loud when I read your response! (Thanks btw as laughing is like a foreign language to me now) Every time my husband gets on that Damn bike I have the EXACT statement in my head. OH LORD! THIS IS STUPID. As for the trike, he has definitely talked at length about...
  14. M

    New and unsure of what to do next?

    What about riding a bicycle? His left leg is the one that had the limb onset and set this whole thing into motion, so it's the weaker of the two. More atrophied and he has severe foot drop and his perineal nerve is completely dead. BUT....he has taken to riding my 11year old daughters bike...
  15. M

    need some encouragement

    Hello Cheryl, I just read your post and it felt like I wrote it myself, like you were describing my husband and our life. Mine was also diagnosed in March and our year has also been a complete blur. I %100 understand everything you were saying about wanting to make memories now while he still...
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