Recent content by mbg1977

  1. mbg1977

    Reldesemtiv

    is this an existing drug?
  2. mbg1977

    Reldesemtiv

    is this an existing drug? so you ask for sharing experiences ?
  3. mbg1977

    Therapy with ibudilast - failed

    why they prescribe you antiepileptics? which ones and why?:confused:
  4. mbg1977

    FDA approves Xeomin for drooling

    how about its cost ?
  5. mbg1977

    NurOwn stem cell phase 3 study

    the phase 3 trial in us seems not going well . there are no good news . the trial started long time ago and people already have second infusion
  6. mbg1977

    NurOwn stem cell phase 3 study

    my guess is 300k+ usd. rumors pointing out this way how would they ask such a big money for a non cure treatment ?
  7. mbg1977

    H.P. Acthar

    anyone have experience with H.P. Acthar ? does it work in some way ? https://alsnewstoday.com/2018/04/20/aan2018-hp-acthar-gel-shows-promise-delay-als-progression/
  8. mbg1977

    Restarted Pimozide.

    i am sorry my main concern is about stiffness it worsens at legs
  9. mbg1977

    Restarted Pimozide.

    Bestfriendstilltheend which side effects you have experienced?
  10. mbg1977

    Restarted Pimozide.

    Bestfriendstilltheend what dose you were on?
  11. mbg1977

    Restarted Pimozide.

    here in this article https://alsnewstoday.com/2017/11/21/study-finds-that-schizophrenia-therapy-orap-benefit-als-patients/ the researchers say "A key finding was that within six weeks of the start of treatment, Orap preserved ALS patients’ thenar muscle function. " how could they get to...
  12. mbg1977

    Restarted Pimozide.

    Bestfriendstilltheend so I understand you think it's not working ??
  13. mbg1977

    Restarted Pimozide.

    Tedstehr are you using the drug ? what have you experienced so far ?
  14. mbg1977

    Restarted Pimozide.

    Tedstehr you wrote "Are you experiencing muscle wasting and weakness? It appears Pimozide (ORAP) will have the greatest effect on those symptoms as it designed to keep the muscles and neuron to muscle connections stronger for longer. " what benefits may be expected after starting the drug ...
  15. mbg1977

    Restarted Pimozide.

    Hi Bestfriendstilltheend do you know other peoples' situations in the trial ? what is the duration of trial ? how many weeks ? are there any publications about it on the web ? thanks
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