Recent content by Matt21

Hello Kastii , I hope you are doing well, I was wondering how your situation is and whether you have found any improvement. I am still in the same boat as before, with periods where i feel a lot worse than other times. Let me know how you're feeling these days. Cheers, Matt

Thank you for the responses, direction and help. To answer some of the questions: - I have my neuro follow up this Monday and I will talk about functional neurological disorder. - I have been on meds for anxiety and saw a psychologist for a while. The meds and therapy help with the anxiety...

Bonjour! I am actually in france this week, what a small world. I have no idea what is going on with me. I am really nervous about all of this because it is in decline. I honestly don't know what to recommend to you as it is such a difficult situation to deal with. My life is in limbo, never...

Hello Everyone, I got some personal messages about my status and thought of sharing with you. I am still freaking out over ALS by the way, which is not healthy at all... I'm a 39 yr old man who has been experiencing ongoing neurological/muscle issues for the last 10 years. I will summarize...

Hi Andy, I can't send private messages here but I was I retested in getting in touch with you. It's about talking to you about our symptoms that are so common and seeing if there are things that helped. My email is [email protected]. Would be great to get in touch with you. Cheers, matt

Hi, Thanks for your message. I can relate to the muscle fatigue vs weakness as that's how my doctors have been calling this. After using a certain muscles too much i just can't do something after wards. For instance, I cleaned the car the other day and my hands became stiff to the point where i...

Hi Sean, fellow ontarien:) how are you holding up? Did your symptoms resolve and did you get not info / diagnosis into what's going on? I'm undiagnosed but not doing that great lately... Cheers, Matt

Thank you for everyone's comments. I posted my 7 year update on this forum as ALS is still in the back of my mind and I had seen some other undiagnosed people with similar symptoms having concerns like mine. I am grateful for all your responses and direction, your interest in helping me figure...

Thank you. I will definitely look into the functional pain clinics in Toronto. I think there is a doctor at the western hospital here that specializes in movement disorders and also looks at cases of functional neurological disorders. I tried to do improvements in my life style that were in line...

Thanks for clarifying and suggesting to look into that. I will bring it up at my next neuro appointment. I did have an epileptic seizure when I was younger, maybe that will have some relevance to a functional neurological disorder diagnosis. I will also inquire about the mito tests and muscle...

Thank you very much for your response. My neuro thinks that I wouldn't have all the stiffness and slow progression with BFS and I barely have enough tender points for a fibro diagnosis. He also thinks that it's something that is seen more often in women then men and that it's a label taht has...

Hi, I just posted a thread to summarize my symptoms. I thought that others may be interested as well. I am still working but i am not living a normal life. I am drained of energy, in a lot of discomfort especially in the morning, i cannot run around with my kids or play sports. I can't sit on...

Hello everyone, I have stayed off this forum for a while as I do not have an ALS diagnosis and I wanted to avoid being disrespectful by bringing up conditions that probably don’t scratch the surface of what some of you are going through. However, I was exchanging a number of visitor messages...

Sucks to hear you're not doing better. I noticed you mentioned a perineural cysts that extends the entire length of your spine, did I read this right? I have a similar condition at the top of my spine called a syrinx. It is very small, but I did speak to some experts who agree that it could be...