Recent content by mathilda32

I wanted to update in case anyone reads this. After I wrote my first post I started twitching everywhere. The worst areas were my knee and tongue. I was soooo stressed about everything. Anyway I went to see my neurologist today and he did an emg and nerve test in my weak arm. He told me that my...

I am so sorry and ashamed. I feel terrible. Thank you deeply for your support. I know I don’t deserve it. Prayers to everyone. z

Oh God. How did your husband realize it? Mine started randomly when I realized I couldn’t lift heavy groceries. The arm can still life light things. Does this type of als progress quickly? I’m at the point now where I am hoping I have enough time for my youngest child to have memories with me. :(

Yes thank you it has. I’m just so upset right now. I need to let it out and then refocus. Thank you for your patience.

I know I’m being selfish becUse many if you have been diagnosed or deal with this. But I’m thinking of my kids especially my 6 month old daughter. I’m crying in my car.

I’m a mess. The doctor is worried and said I have pretty bsignificant weakness in my upper right arm. He’s sending me for an urgent neurological referral. I am devastated. I don’t n me what to don

I was able to reach the doctor on call. I explained my symptoms and he told me to come in today as he felt this needed immediate attention :( I will update after my appt. I am in the waiting room right now. Has anyone had clinical weakness and not end up having als?

Yes I see what you mean. I will take your advise and only come back if there are problems following my appts. Thank you ��

Thank you kindly for taking the time to respond. Just to clarify, I have not been worrying about the disease for all these years. I let is go shortly after my first post. I only became worried again when I noticed the loss of muscle strength in my upper arm. Your explanation on weakness is very...

Thank you so much for replying. I agree my personal care has gone downhill. But in reading all the posts in here most people only have perceived weakness. I am worried because my weakness is real. I can’t lift heavy weight like I use to with my right arm. It’s so scary.

I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...

Thank you. I know u must be sick of answering these questions. My relative had bulbar onset...started with voice change. It happened so quickly after that. I didn't know much in regards to the medical aspect of his illness. I didn't ask, and I didn't research. Mostly because I agree tthat the...

Hi everyone. This is my first post. I recently lost someone close to me to als. It alll but ruined me. Having seen this disease in person, I feel very foolish to be posting on here with my, as of yet, petty problems. However, I am prone to obsessive behaviours and would like some opinions...