Recent content by Marypotter

  1. M

    Bad hospital experience

    hi every one, have not being well and in hospital. have a small problem with heart and not enough pressure to pump blood around body. While in hospital had a terrible experience and only happened to me because I did not have a voice. Was brought to bath room for shower. When lifting me off chair...
  2. M

    hi, sorry for not contacting you sooner but did know how to. Sharon my daughter just showed me...

    hi, sorry for not contacting you sooner but did know how to. Sharon my daughter just showed me how to. Thank you for being my friend. I am doing okay but neck getting very weak. Very worried over this.
  3. M

    Has anyone tried these trial drugs?

    I am thinking about going on these trial drugs and wondering have any of you tried these drugs. Do not know if my doctor will give to me and is thinking about it. If not could any one advice me on a good company to buy over internet. What research is being done? The NINDS supports a broad...
  4. M

    hi holly welcome to the site...

    hi holly welcome to the site...
  5. M

    Can You Hear Me?

    hi every one, I think loosing my speach has left me in a silent world. I use computer and when I can not use hands. I use my head to tip switch and all the shaking of head is making me dizzy. I can not win. I always taught loosing my speach was a living night mare but now with muscles getting...
  6. M

    have refused peg feeding.

    what can I say and thank you you all for you words of wisdom. Roderick you were the topic of conversation at our dinner table on Sunday. My seventeen year old daughter clodagh said what are the chances of daughter getting married same and would like to keep in touch. Fathers day was on Sunday in...
  7. M

    hi andie, I am also new and am finding forum a very comforting place. I wish you well . God bless.

    hi andie, I am also new and am finding forum a very comforting place. I wish you well . God bless.
  8. M

    have refused peg feeding.

    I do not know what to say but this life is a ***** for some of us. We are going to a better place. I have toLd family and friends I will let them know when I have passed over and we can laugh about it. Are you able to speak and do you have use of hands. Have you grand children. I have two ten...
  9. M

    have refused peg feeding.

    thank you for your messages of love and hope. I was nervous about bringing up this subject. We are all fighting this disease with great courage and strength. It is a decision that grew on me. I could not explain the feelings of hopelessness and despair I have gone through when out side shopping...
  10. M

    have refused peg feeding.

    thank you for you replies. I have a lovely picture of the divine mercy on my bedroom wall at the bottom of my bed. I know he is protecting me and I have a chat with him every night before going to sleep. I was in medugorje three years ago and was in lourde with the last two years and I do not...
  11. M

    have refused peg feeding.

    I go in to hospice for restspite to give my carers and family a break. at the hospice I made a living will. I have refused to be be peg fed. I have refused antbiotics. Do not want any medical intervention and want nature to take its course. At the moment can not use hands. Am in a wheel chair...
  12. M

    Jokes Thread

    Re: ghost story This story happened a while ago in Dublin, and even though it sounds like an > Alfred Hitchcock tale, it's true! > > John Bradford, a Dublin University student, was on the side of the road > hitchhiking on a very dark night and in the midst of a bad storm. The night > was...
  13. M

    Jokes Thread

    Re: Ghost story This story happened a while ago in Dublin, and even though it sounds like an > Alfred Hitchcock tale, it's true! > > John Bradford, a Dublin University student, was on the side of the road > hitchhiking on a very dark night and in the midst of a bad storm. The night > was...
  14. M

    Is there light?

    I am sorry and not used to technology other wise would have got back to thank you for all you support. My hands do not work any more. I use my and have very good support in my head. I am finding my way around forum. I will get used to it after awhile. It is a wonderful support group. When...
  15. M

    Is there light?

    Hi all i am in a very long dark tunnel at the moment, is there light at the end of it?
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