Maryo

I'm one of the primary caretakers for my Dad who has had ALS for 13 years. We are very close and this hour a night was also my therapy ....we just get each other and he is always on my side. Recently with a full time job and two young daughter I feel like I'm spending less and less time with him. I go over every night to help my mom get him ready for bed. Sometimes I feel like I'm in and out juggling a million things. I feel guilty and recently I feel he is changing stages ( and it never goes up). I used to able to do movie night, make the foods he could eat and give him all the town gossip. How do other caretakers deal with time management and guilt? Also, my father really outlived all expectations I've seen some recent changes does anyone know what some signs of the end my look like. Thank you for any advise