Recent content by MaryMcK

I have the same thing.....glad to hear about the Robitussin. How often do you have to take it?

When I was at my neuro appointment last week for my FTD, I mentioned that my day time twitching in my legs seemed to be less since I've upped the gabapentin to 2400 mg to help with the night time cramps. She said if the twitching has lessened with gabapentin then it isn't ALS. But she has...

I've had confusion and memory problems for over six years. When I couldn't remember how to put my denture back in my mouth is when I first went to doctor....that was really scary. After the cat scan, mri and spect scan....showing abnormal shrinkage of frontal lobes, is when I got the diagnosis...

I'm up to 1800mg of gabapentin and 30 mg baclofen...and am finally getting some relief from the terrible cramps in my legs. Hope they keep working!

Hi Karry: That is such a beautiful letter and a lovely idea. What a treasure you will have, if Grandma is able to write her memoirs for you. But what a gift to her to know how much she means to you for sure. I know when I was diagnosed with frontotemporal dementia two years ago, I wrote my...

Brisk reflexes For those of you with loved ones diagnosed with both frontotemporal dementia and ALS, I was wondering if they presented with the brisk reflexes which seems to be one of the keys in the early diagnosis? I have very delayed reflexes, and I'm thinking this is because of the FTD...

Lisa, I'm so sorry to hear about your husband....is he OK? I hope you'll keep us posted. Hugs Mary~Canada

Running into things Hi Lisa: I also was running into things on a daily basis...doors, walls, furniture, and when I walked outside I was falling against building walls! Finally got myself a walker last November to use outdoors...and inside I walk hanging onto furniture. I've also found if I...

Feeding tube I'm so glad you found this wonderful forum....everyone here is so loving and helpful. I also was diagnosed two years ago with probable FTD...the language presentation. In the FTD forum I go to, the feeding tubes have often been discussed...and the majority of us with FTD have...

Walker Hi, I just wanted to mention when I got my walker back in Nov. last year because of my balance problems, we found we could borrow one from our local Legion. Apparently there are other agencies in Ontario, Canada who also loan out walkers. Not sure if this is available in the States or...

Hi Cindi: Actually, with my frontotemporal dementia, I have absolutely no problems with my memory...just the confusion. I had to take early retirement at 60 because of the confusion I was experiencing in my secretarial job. From what I read in my FTD support group, the only people who don't...

Hi Cindy: I am so sad the doctors haven't got your husband on the aricept and namenda yet. They have made such a tremendous difference to me with the confusion. I'm still able to have an almost normal life, completely different than before these meds. I'm getting really excited about this...

I have tried the quinine, but had a very bad reaction to it. I will definitely mention the Baclofen to the doctor. I am also taking cal/mag which I heard also helped with the spasms and cramping. My speech has been fine so far.....mind you this morning, when my tongue was hurting so much...

Hi Midwest girl: Yes, apparently this neurologist specializes in the muscular diseases, different from my neuro who specializes in FTD. I do go back to my FTD neuro on Aug 22nd, so I will be discussing this with her further also. I had a rougher night than usual with the leg spasms, and this...

Hi Lesley and Midwest Girl: I was diagnosed a year and a half ago with the language presentation of frontotemporal dementia. I take aricept and namenda which are fantastic drugs, and help with the confusion. The MRI and CAT scan show abnormal atrophy of the frontal lobes. I have no memory...