marya

Mary, I so appreciate hearing from you. Thank you very much for your blessing and your prayers. You are in my daily prayers for comfort. I don't know how you can love Marty as you do and not be overwhelmed and battling this loss. It is really helpful, I'm sure, to think of his being with Jesus right now...the eternal "now". Without God with us, the sorrow of life would be too much to bear...I am grateful for Him beyond words. Thank you so much, Mary, for stopping by. God bless you and keep you. Love, Ann

Thanks for the support and for the advice, Netty.... I am in day 17 now of life without Marty. Just like ALS this part of it sucks on multiple levels. Right now people are still supportive - it's so soon still and he went so fast (for them) - I've been dealing with his failing health for over 5 years - but his dx was 4-27-10 and he died on 6-30-10 so it was really fast from dx to death. Life without him is bland and colorless - he was such a fun guy and he made friends everywhere we went. But I am doing firsts already - I went to my first play at The Alley without him last night. But I'm glad I went. So, tonight taking it easy. I'm going to keep taking steps into the future - because to do any less would dishonor Marty's love for life and for me....

I am so sorry to hear of your loss. I am not going to tell you the normal 'bs" that time heals all, because it doesn't. Freddie has been gone for over a year, I could tell you down to the moment, but I am trying not to dwell. This disease is the worse. I have lost my soulmate, my true love but most of all I thought my reason for living. Yes I will never get over what happened to me.NEVER, but life is going on, All I can say to you is don't let people tell you how you should feel, I have found those people were usually the ones that were NOT there because they didn't want to "look" at it.
I spend alot of time with my grandchildren that are older now because I missed them when they were young due to taking care of Freddie.I guess what I am trying to say is take "your" time in healing, You were the one that also lived in the hell, It takes a part of us all.
I am going to school in the fall to be a RT. Funny how things work out...
much love to you all
netty

I'm hanging in there - missing Marty but I still think he was blessed by God to be able to go out on his own terms and when he wanted to - not everyone gets that option. The article in the Houston was nice.

checking in again with love winging

Thanks for the reflexology tip, Mary! Hope you are having the best fourth you can have, considering the circumstances. I appreciate you offering your advice. Thanks, dear lady...

Mary, I'm thinking of you...your loss is so fresh. I pray you be comforted, moment by moment.
Love, Ann

Oh Mary-I'm so sorry that your husband/heart/partner has passed. I am crying more than I expected-you and your husband's story has so touched my heart. Prayers of peace to you as you walk these next days...weeks...months. I know that the memories of your life will eventually allow your heart to soften the pain of your loss.

Love,
Melody

So sorry for your loss, Mary. I feel your pain, and also Marty's peace. As a widow of 4 years, I can tell you that the pain softens in time, but the love remains strong because of the good times you shared. I hold you in my prayers.

thinking of you and sending love and courage

Mary I just read your blog and it made me tearful reading about how much you love Marty. And I just looked at all of your photos of you and Marty. I want you to know I am thinking of you and saying prayers for Marty.

Rose -sure you're right,it's just hot everywhere these days. It'shot and humid and icky. But Houstonian's believe in air conditioning - so it's ok I am a vanishing breed - a native Houstonian who still loves this city and the opportunities it provides. We're not as she-she as Dallas and not as weird as Austin. I'm sorry to say I did not know Freddie Everitt -sorry that his talent &life were stolen from us all by ALS. I notice things every day that this disease is stealing from Marty and also from me. I feel so helpless because I can't fix it - make it better, or anything except be here to advocate for him. In my heart I know that it's what I can do, but it doesn't change the fact that I can't make him well.
I'm envious!I always wanted to be a flight attendant -even did a career report on that when I was in junior high school - but I married young and had children and ended up staying on the ground. All the places you must have gone to and seen - neat stuff.
Stay cool ---- Mary

Marya,

I just noticed you're in the Houston area... (I know that city, or atleast the airport very well, as I flew for Continental Airlines many years)... anyway, there is a forum member who is also in your area, Freddiesnetty (Netty) Freddie was the PALS, and he has since passed. He was a musician, and you may be familiar with him, Freddie Everett It might be helpful to you to get to know Netty. She really fought for Freddie, was right there every step of the way. She's not been on the forum lately, but most likely still gets email notification of private messages which are waiting.

BTW, I doubt your heat is much worse than ours right now, 100 degrees (literally) yesterday.

Take care, Diane aka Rose

SO glad and so RELIEVED you like it, my dear dear friend.
Much much much love to you all there

hi mary i hope and pray you and marty are doing ok today stay strong your in my prayers jeff