Recent content by Mary2

V...I had friends who went to the Van Gogh exhibit when it was in Atlanta. They really enjoyed it! That is a benefit of San Diego..the weather must help you to be able to get out! PALS sits with his headphones on glued to the computer all day. To speak with him, I need to remove the head...

RMT! I am glad to hear that the antidepressant is helpful! And your PALS is sleeping! Good news! V I looked and I see your PALS diagnosis was in 2015. You both have been handling this diagnosis awhile now! No wonder you are tired! I admire your strength!

I posted on a wedding website when I came to understand I wasn't hosting the rehearsal dinner. I said I was so disappointed and the cost of going (hiring someone to stay with PALS ...he doesn't want to go....and an extra night in the hotel, plus 40 minutes each way to the venue so 40 minutes...

I will reach down there with you V. I am thinking about you and your PALS. Not much new here. Just going along. i found out yesterday or the day before that I wasn't hosting the rehearsal dinner (only about 10-12 people i think). My son and future DIL are going to do it. Probably just as well...

The receptionist at the pulmonologist's office sounds as if she is on top of things. Good of her to make sure there is a Trilogy for you. I think the clinic might be helpful if they have a dietician you can speak with, but I am not sure I would wait until March to speak with a dietician or a...

So sorry for you loss. My thoughts are with you and your family. May you find peace and comfort.

My PALS is close to the status of your PALS but can still operate the wheel chair and eats dinner and takes pills. He has had several choking episodes. All on throat secretions, none on food. He is on a mucous thinner, has a cough assist and a suction machine. Last week we purchased a quad alarm...

K, Sorry to welcome you here. This forum has been a great help and support for me. My husband uses the Trilogy 24/7 and is comfortable on the Trilogy. I understand your pain. Watching your husband/ PALS decline is very painful. We are both on antidepressants and they are helpful. We try to spend...

PALS said he was Short of breath today so I put him on the alternative settings the Trilogy has. I called the RT after hours and he said we could stay on those settings if we wanted to. The machine is set at 26 BPM and PALS is breathing 40 to 43 breaths per minute. I am tempted to call the RT...

Thanks Jim, I don't think I can increase the hours much more, except maybe towards the end. I get PALS up every morning and give him his meds. He has quite a few! Then 3 mornings a week the caregiver takes over. I don't think the caregiver has the strength to pull the mat under PALS. to get...

Thanks Vitsra! I have had to up the hours of my caregiver as well. I still don't have help in the evenings or at night but that may have to happen at some point. The cost is a concern, but there is no way we can take care of our PALS without sleep. I am so pleased the new headgear is working...

RMT, I hope you and your PALS and family can make it to Hawaii. I was there for a couple of weeks in the 80's and loved it! We are watching UGA v AL tonight, so will be staying up late. UGA is hanging in there better than I thought they would! I am amazed he has the energy to stay up for the...

Thanks for the ideas Igelb. PALS loves the ergonomic arm rest idea. We did not get far into looking at desks or alarms this week. The days are busier and busier with his meals and care. We do have an assistant coming 3 mornings a week. PALS has agreed to have Kate Farms for one of his meals...

emphasize....should be have empathy.

Hi Karstboy, My PALS and I take antidepressants and xanax to sleep. These medications have been helpful for us. I can relate to the construction work. We laid a hard floor down and this took a week and I was so stressed by having the men in the house by the end of the week. I emphasize with how...

Happy New Year to everyone! PALS arm movement is deteriorating and it is time to take the computer off his lap and put it on a desk. Anyone have any thoughts about what type of desk is best. Also we need an alarm, I have looked at doorbells, but they seem raised up to me and I don't know if PALS...