Recent content by Mary-Lynn

  1. Mary-Lynn

    ALS and Driving

    When my brother started having difficulty driving, he put a foam wedge under his right leg . The fat end of the wedge would be under his knee. He also wore braces that kept his feet and lower legs stabilized. Having the knee elevated like that allowed him to move from accelerator to brake a...
  2. Mary-Lynn

    Familial ALS (FALS) in my Family

    Dear Mpiresteve I am so sorry to read about your Aunt. I cannot even imagine the heartache and fear this disease has brought into your life. The losses are unfathomable. Good luck with your genetic testing. I wish you and your family health and peace. Mary-Lynn
  3. Mary-Lynn

    My brother is declining

    Thank you so much, Helen L. It sounds like you have an incredibly good heart... It is good to get the perspective of those who are living with ALS/MND. You can tell me things that my brother, gentle soul that he is, would never say. Like I need you to be strong and positive for me right now. We...
  4. Mary-Lynn

    My brother is declining

    Thank you sooo much!
  5. Mary-Lynn

    It happened so fast...

    Dear Mrs. C I am so very sorry for the loss of your beloved. Thank you for sharing your private journey with us so that we can open our hearts to you. I will carry you in mine today.
  6. Mary-Lynn

    My brother is declining

    I am new to this site. I am very grateful for the support. My 53 year old brother was diagnosed with ALS in April of 2011. He is a hand therapist, a cyclist, and a photographer. He lives in NJ and I live in MA. We are very close, especially since the birth of his twin daughters 8 years ago...
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