Recent content by Mary J

He was diagnosed in December.

Hi, all. My husband has to have durgery on his deviated septum because he is experiencing severe pain whe he wakes up due to what we presume is extra mucus build up...he has had the deviared septum for 30 years, but has gotten progressively worse in thd past six months. His breathing in...

Thank you for sharing. You and your husband sound exactly like me and my husband. I am the caretaker and he is the one with PALS. He's Grumpy, too. :)

Thank you for sharing--venting is good. You are a good daughter. He must be very happy you are there to be with him when he needs you the most.

By the way, WORLD-CLASS neurologists at the University of Chicago! We've seen four other neurologists here in Des Moines, Omaha and Iowa City. They all simply read what the first doctor wrote in his chart and they all just went along with what the first guy wrote--that there was nothing wrong...

Hi. I posted a while back. I was concerned about my husband's symptoms, but I cannot find my original post on the chat forms. He is 47 and he has had fasciulations, muscle spasms, muscle fatigue, severe pain all over his body, etc. He was diagnosed with PLS and we're to monitor him and go...

Thank you, everyone. The muscle wasting in his arm and leg and the muscle between his index finger and thumb are both noticeable with the naked eye and and measurable with a tape measure. Yes, the pain is waning because the cramping is waning in his legs and now they are just weak in that they...

Hi. EMG came back inconclusive, so we're waiting a few more months to do another one. I only mention the numbness in his feet because the Babinski method has proven useless in diagnosing him, because he can't feel the outside edges of his feet to even do the test. Overactive reflexes is...

Okay, a few typos in the original post.....I think doctors do NOT realize there is great pain in some ALS patients. Clearly a misnomer that there isn't pain with muscle spasms. Also, please note that the muscle between the left thumb and the hand has gotten very, very small and he can't even...

Good Morning: My husband, who is a US Vet, was experiencing what we thought was a bulging disc, that also entailed numbness and pain in his feet and legs. Then the muscle spasms in the middle of the night that made him scream became an every night occurrance. He also was experiencing crushing...