martisa

I was diagnosed with MMN when I was pregnant at the age of 31. The symptoms started in my right leg with sudden foot drop and my left hand. Recently I have developed weakness and twitching in my left leg and hand. Only one finger in my right hand has any real strength and my fingers are curled. Since my diagnosis in 2002 I have had 4 courses of IVIG. The neurologists have concluded that I do not respond to it. Certainly there is no dramatic effect but I am wondering whether the last treatment may have had a small effect insofar as I was able to straighten my right hand for a few weeks. Also, for about 6 weeks, I had no twitching. Has anyone else responded in this way? Has anyone tried any alternative treatment (whether conventional or alternative) which has had any positive effect? I still lead a full and active life but I am prone to sleepless nights due to the twitching and also worrying about the future (if I am like this at 39, what will I be like at 69?)