Recent content by Mark's Girl

  1. M

    ALS Guardian Angels

    Hi Guys, I thought something might be going on....in late December after my husband passed, I contacted Stu because we live within 20 minutes of his location. I spoke to him about all of the equipment that we had that we would like to donate (most of it brand new). He asked me to send him an...
  2. M

    In my dreams, he can walk again!

    Thank you all for your kind words..... I wish you all the best and will hold each of you in my prayers as I try to make a life for myself without Mark....I can't even imagine how to begin this process, I just know it is what he would want me to do. D
  3. M

    In my dreams, he can walk again!

    My beautiful husband passed quietly and without struggle on December 20th. While I am devastated by this sudden loss, I am so grateful that he had not experienced the worse that this dreadful disease has to offer. Mark survived 25 months from symtom onset / 9 months after diagnosis. He is the...
  4. M

    My Soap Box ...

    Well done! I couldn't have said it better! D
  5. M

    Thoughts on this gift.

    I am in the process of doing this very thing....The response from family and friends has been outstanding! I have already received a couple of letters for my PALS and I have to tell you reading them it is both wonderful and difficult I have been overwhelmed by the love in each of the letters...
  6. M

    Our Friendly Neighborhood watch

    Has anyone heard from StevenB? D
  7. M

    Hi Steve, Getting worried....please check in when you can.... D

    Hi Steve, Getting worried....please check in when you can.... D
  8. M

    Trying to Anticipate his needs.

    Oh Lordy! This should be interesting.....the challenges never end! D
  9. M

    Trying to Anticipate his needs.

    Hi Missy, Are you talking Full size? D
  10. M

    Trying to Anticipate his needs.

    Dear CoachMeg, Staying ahead of his needs is a daily challenge. My husband was diagnosed 3/11....His onset was 11/09. He started using a cane to walk in 12/10 after a fall....and by April he was using a rolling walker (1 on each floor of the house). He started having extreme problems walking...
  11. M

    Hi Steve, Just checking in to see how you have been doing. We are working thru things...

    Hi Steve, Just checking in to see how you have been doing. We are working thru things daily....and learning new ways of doing things.... Have a good evening! D
  12. M

    A Long Plateau

    I say ask your questions....isn't that why we are all here? My husband was diagnosed on 3/11 and I too would like to know a few things for planning things for his comfort....I don't think we are supposed to be afraid to get answers here.....I think it goes without saying (or at least it should)...
  13. M

    Our Story

    Hi Brooksea...thanks so much for the suggestion....I will try the mouth rinse to see if it helps him. Any suggestion on what will help break up the phlem when it is caught in his throat? He will not discuss the Suction machine or the Cough Assist Machine.... D
  14. M

    Mark does choke...mostly on liquids...on food too if he does not go slow....eating just exhausts...

    Mark does choke...mostly on liquids...on food too if he does not go slow....eating just exhausts him....so, I don't think he is eating enough to sustain himself....I wont give up on pushing for the PEG until his breathing issues decline to the point that surgery could not be done....I want to...
  15. M

    Our Story

    Thank you everyone for the suggestions and the warm welcome...it is not a club I wanted to join...but....feels like I am among friends so thank you all! D
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