Recent content by markp99

  1. M

    Mumphry - CFS here! 15 months in, fasciculations & cramps are reasonable. Fatigue is my major...

    Mumphry - CFS here! 15 months in, fasciculations & cramps are reasonable. Fatigue is my major issue lately.
  2. M

    New Website Launch

    XenForo. Nice choice; looks fantastic!
  3. M

    Likely Not ALS - that's good news!

    One last quick note: Paraneoplastic Antibody Evaluation just came today back fully negative. Neurologist called to discuss and was confident in his diagnosis of "Benign Cramp Fasciculation Syndrome". Nothing more to do at this point but manage symptoms. No need even for further follow-ups...
  4. M

    Likely Not ALS - that's good news!

    Went to MGH today for my 4th EMG and new blood work. A little history: 1. May 01 - Continuous bodywide fasciculations and cramping commence, but no weakness 2. Jul 27 - EMG #1 Clean, BFS diagnosed 3. Nov 09 - EMG #2 Chronic denervation observed, "Possible ALS" diagnosed as a placeholder...
  5. M

    Likely Not ALS - that's good news!

    2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...
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