I have had Facilitations since April 2021. However had an EMG on 1 August, and was diagnosed with a Motor neuron disease. They won't say it is for sure ALS at this point, to rule out other things.
As of this writing (5 Aug, 2022) both , arms have gotten weaker and smaller, and my hands have gotten smaller and are very weak. Also I have lost the ability to take deep breaths and the automatic breathing that you do when you sleep has been compromised. I recently went about 10 days without very little sleep. However I got a BIAP machine two day ago and it is now helping me to breathe at night.
Update - As of 9 Aug, 2022, I was formally diagnosed with ALS
- Location
-
Virginia, USA
- Reason
- PALS
- Diagnosis
- 08/2022
- Country
- US
- State
- VA
- City
- Ashland
- Occupation
- Retired
-
3
User has posted 10 messages.
-
50
Upgrade your account and become a forum supporter.
-
2
Somebody out there reacted positively to one of your messages. Keep posting like that for more!
-
1
Post a message somewhere on the site to receive this.