Recent content by Markbreton

OMG these situations are so difficult to deal with. We have 6 children and had to have this discussion. There is no easy way and there is nothing wrong with letting him know you are very sad and crying is definitly OK as well. I wish you never needed to have this discussion with him. The...

No you are not alone. Everyone using ADP is affected. My wife also received the letter. Bascally ADP will give you payments 4 times a year to the max allowed. We will be responsible to pay the suppliers with this money and anythin over the max will be the patients responsibility. In our...

Your always best to touch base with the Dr. who installed it but my wife's site was sore for a few weeks post insertion. What is it seeping? Blood?

Hi Missy It's made by Emerson and it's a model CM3000. If you decide to purchase on then I strongly suggest that an RT teach you how to use it. Basically you forve air into the patients lungs and very quickly draw (suck) it out and this mimics a cough. As you can tell it's all done by...

Tammy has been home and on a vent for over 2 years and in the beginning it was difficult. Her alarm rarely goes off now, she sleeps through the night and is reasonably happy. Couple of tricks though.... whe have a cough assist machine which we use every hour or two. This keeps the mucus plugs...

My wife and I are CONVINCED that ALS, is some cases, is manifested by external things. Our neuro asked us, on the day he told Tammy she had als, "have you been exposed to any harsh chemicals or toxins?" Now why would he ask this? I see you are from Perth..we are from Smiths Falls.

My wife has been getting botox injections in her salivary glands every 3 months for the past 3 years. It GREATLY reduces the drooling. BUT! The botox has to be injected correctly, the salivary glands are very small. In the early stages the DR. used ultra sound to find the glands. Now she...

Sorry about the terrible news. HOWEVER, my wife is coming to her 5th year with ALS! Yes she is confined to a wheel chair, eats by PEG tube and is on a ventelator but we still have some quality of life. Granted its winter here in Canada but once the snow is gone, in a few weeks, we have day...

Very controversial topic with many diferent opinions. One must choose based on their own beliefs and leave the folks with different opinions alone. What is OK for one person may not be good for others and thats a personal decision. PERSONALLY, if stem cells, no matter how they are...

I have not visited this site much since the spring so I thought I'd give a brief update on my wife, Tammy. Well, its been 4.5 years since diagnosis. She has been on a vent for over a year now. Luckly I have private insurance and with it I get home nursing 24 X 7. Although Tammy can no longer...

I wish I was a DR. so I could understand it....:oops:

My wife has been on a vent for over 2 years now and we believe it was a good decision. Overwhelming at the beginning but this ends quickly.

My wife tammy who is in late stages has been getting botox injections for 1.5 years every 3 months and she has almost NO drooling. apparently it does not work for everyone, but I believe it all has to do with the Dr. who injects it. The glands are very small and hitting them is difficult...

I agree with Tom. Tammy had a scooter and was only able to use it for about 7 months. She is now in an electric wheelchair and we gave the scooter away. Please consider how quick the progression is and how long the scooter will serve the purpose. If money is no issue go for the scooter...

Our GP e-mailed me to say that as soon as she receives the vaccine she will come out to the house and give Tammy the injection. Should be within the next few weeks. Tammy is at the top of the list for the shot.