Recent content by mariasb

  1. M

    I think it's ftd but not sure

    Hi, I am Maria and have the previous thread on here "He's gone". First, and foremost, I am so sorry that you are going through this. All summer long I prayed for death and my prayers were answered. it is awful to see a loved one, especially your spouse, having to go through all of this. Not...
  2. M

    He's gone

    My husband had been stable with hospice care at home but I noticed changes in him the weekend of Sept. 7th. By Sunday night I realized that he was probably dying and the hospice nurse came out Monday. She said yes he was worse than he had been but did not think it was his time yet. By Tuesday...
  3. M

    Hard decision

    Thank you all for the information and support. Also for the info. on Nuedexta. My husband has problems with pills and our hospice nurse prescribed the two active ingredients in Nuedexta but in the liquid form. One is the active ingredient in cough suppressant and the other is quinid. I...
  4. M

    Hard decision

    My husband has been in and out of the hospital the past few weeks because of anxiety/mental issues. He had been on some anxiety meds but was still yelling a lot of nonsense mainly at night when we were trying to sleep. Our clinic advised us to take him to the ER to be evaluated. They...
  5. M

    Totally different person

    My husband has ALS and I am his caregiver. This is very sad because I feel that I have already mourned the loss of my husband even though he is still living. He is not at all the same person that he was before ALS. We truly believe that he must have some brain involvement and dementia but...
  6. M

    Anxiety medications

    My husband is on Zoloft daily and takes Xanax at night and he is much more calm than he used to be. He still has some anxiety outbursts when he is really tired but all and all the meds are working. He is seen at the ALS clinic at Univ. of Michigan which is supposed to be one of the best and...
  7. M

    Just trying to vent

    My husband is 52 and was diagnosed with ALS 11/12, however, he had physical symptoms since 1/12. He is becoming more and more compulsive and also very child-like sometimes. The tantrums are ridiculous as he screams in this high pitch tone that I have never heard out of him until recently. I...
  8. M

    Just one positive thing one day at a time

    Hi all. I have always been a huge planner....planning for this problem, or in case that happens and planning for the future. My husband of 24 years who is 52 years old was diagnosed with ALS in November 2012. As you are all well aware, there is NO planning for that news. As a previous person...
  9. M

    Husband newly diagnosed with ALS

    Hi, I saw your post and decided to register. My husband was diagnosed 6 months ago and we too live in Michigan and have care from U of M ALS clinic. His symptoms started in his hands about a year ago and have drastically become worse. His hands are very withered. His speech is now slowed a...
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