Recent content by Marianne

Hi, Stan went on a vent last summer. For the past year he only needed to be vented at night or during the day when resting. Otherwise he was plugged and used a nasal canula for extra oxygen. He had some medical complications a couple of months ago that really weakened him and is fully on the...

You said he is on a ventilator. It has alarms. Can he cough? In my case, Stan cough's so that the alarm goes off which wakes me at night to come and help. It does not take a strong cough, just a very slight one, even slight clearing of his throat. Not sure if your husband has enough of his...

Stan's conditions are a little worse than yours. He is much weaker now and needs assistance when moving from chair to bed or cammode. Up to now he has a walker in front of him for helping him to pull himself up. I leaverage under his arm (arm pit with my arm and assist with pulling him up . I...

Stan (my husband) not only has a very itchy scalp but it also effects inside his ears. He has had a full head of hair right through to his 70's. It the past 2 years as the disease progressed his hair has thinned and he has been fighting a "cradle cap" like eczema . Lots of drandruff. I too...

Stan also has ALS for about 1 year. He has other complications (COPD) as well. This summer the did a trach and he is vented at night. He also takes ativan as needed, temazpam at night to sleep and takes paxil daily for depression. It helps him cope. It does not make him dopey or change his...

Dear Readers, Well like many on this site the doctors did many tests and concluded that my husband Stan has ALS. He has had difficulty with breathing for several years and had gone to several specialists, lung, and heart. Had been diagnosed with bladder cancer (which by the way has been in...