Recent content by mariam

Hi Santa Joe...sorry I've been MIA. Really crazy busy with my kids this summer and haven't had a chance to get on here. Things are ok. THANK YOU FOR CHECKING! :) My parents just about ready to move in with me, they are just trying to sell their house. My dad's feeding tube is being put in...

Tillie, I'm so sorry to hear about your husband. You are in my thoughts and prayers. My dad has the bulbar onset, diagnosed end of October 2013 and today he is having difficulty speaking and I am having trouble understanding him. Breaks my heart. His ALS symptoms seem to have really shown up...

I am so sorry to hear that. It is really tough, my mom is going through the same thing with my dad and it is driving her crazy and making her depressed. You need to get out and have a little bit of social life, or maybe you can invite friends and family over? My dad has the FTD also and his...

Thank you! We were thinking of getting them a condo 5 minutes away, however we felt that it was best to have them here with us. That way we can all be together and give my dad the warmth and love of the family. My brother and his family live 10 minutes from here so it will be a nice blessing...

Thank you Chrissy! Appreciate the nice words! It is tough, I'm sorry to hear about your mom. It just makes me so sad to think of what they are going through and it scares me of what is to come. I am truly blessed to have the opportunity of taking care of my dad and also giving my mom more of...

Thanks Barbie! We do stuff like that to try and help. We try and bring him here as much as possible so that he starts getting more and more comfy. He loves staying here with my teen kids when I take my mom somewhere. I keep telling my mom that my dad is scared and frustrated that he can't...

Will do Max!

Thank you Katie, I keep telling my mom that and to please have patience with him. It breaks my heart that his mind is not the same it was...he was such a strong, respectful, wise man that we all looked up to, I want him to feel like that always. I treat him with so much love and I go out of my...

Wow Max! Thank you for responding to my issues! You seem like a wonderful man who is enjoying life and not letting things get you down. I truly loved reading your post back to me. The computer key board sounds fantastic, please let me know how you like it! The problem with my dad will be...

Thank you Paulette! He is a big two year old! Appreciate your kind words. :)

Thank you for the kind words Santa Jo. I will definitely look up that group and I'm trying to get my mom to come on here. She is having a really difficult time right now with him and today was a really bad day with his behavior. Thanks again and we will be in touch! :)

Hi All! I have not been on too much in the last few months. My dad was diagnosed end of October 2013 and seems to be hanging in there. He has Bulbar so his speech has gotten harder to understand and I can tell he tries hard to say his words. His left hand looks like it a claw, but he seems...

Hi there! This is Mariam...you and I have similar deals with our dads with Bulbar onset. Hope he is doing ok. My dad is starting to slur more and just slow down. He also has his frontal lobal(sp?) affected in his brain so he is just not himself anymore, very childlike. But so far he is doing...

Hi guys! So sorry I never wrote back to you...I just saw these posts. Reality is starting to set in as I see him progressing now. Its been almost 5 months now and it breaks my heart thinking of him being sick. He went to UCI Medical Center here in Orange County, California and my mom LOVED...

I totally understand how you must feel Bernie, however as a daughter of a dad with ALS, I would do anything for him, including taking him to the potty and helping him. He is not at that point yet that he needs assistance, however I feel for him that he will be embarrassed...I don't care at all...