Recent content by Manda

Thoughts? Sorry if this is not knew information or has already been addressed. Just wanted to see if maybe someone knew more about this. https://alsnewstoday.com/2016/11/15/ema-panel-recommends-orphan-drug-status-als-therapy-ibudilast Thanks :)

Good luck! Look forward to reading about your updates and any results!

Hello, sorry if this topic has already been brought up far too many times. But I just thought I would share my fathers experience with stem cell America from a a couple months ago. I wanted to wait a little while before sharing just in case there were any changes in the results. So I believe...

My father has ALS and is unable to use his hands and walk on his own. He can walk a little little with assistance. Anyways, I was wondering if anyone had any suggestions for activities that my family can do together with my dad? All we do is sit and watch tv and I always feel so sad because I...

My father also wakes up 2-4 times a night, depending on which meds he takes. I think it must be a combination of discomfort, racing thoughts, breathing issues, and dependance on sleeping pills/pain pills. My dad also had an issue with always having to use the bathroom around 3-4 times through...

What ever happened with that GM604 drug? I remember following the excitement over this drug but never found out what the end results were.

Hi, I just wanted to thank you for all of your responses on everyone's posts. You are always such a helpful member to everyone and it's really appreciated. Thank you!

So in reality, when do you think this drug is REALLY going to be avaliable for patients to try? Don't worry my hopes are never high.

My father has ALS. I am his 20 year old daughter who is very close to him. I still don't think I have accepted that he has ALS, even a year after his diagnosis. I think, with all the articles I read about different "breakthroughs" and "promising results", that I have tricked myself into...

It makes me feel a little better that we are not the only ones. I just don't know why he can't sleep and if that's even the true reason he gets up every 2 hours a night to get another ambien. But I will defiantly suggest the extended release and insist he talk to his doctor, it's just hard when...

Thank you guys so much for all of your responses, but everything is just getting worse. So this morning around 10am, my dad, who was on 8 ambiens, tried to get out of bed to get another one, fell and hit his head on the tile and was bleeding everywhere. We had to call 911 and the peremdics took...

My father has had ALS for probably about 2 years now. For the last year he has had terrible trouble sleeping. We tried getting him a new memory foam mattress and given him melatonin/Advil pm. But that didn't seem to work. So then he was prescribed zolpidem (a generic form of ambient). He has now...

Hello my name is Amanda and I am 20 years old. My father was diagnosed with ALS in May of 2015. He is my rock, my everything. My mother suffers from alcoholism and schizophrenia so it has been incredibly difficult, to say the least. Without my father, I don't know how we will survive. So I am...

Hello, just hoping to hear some updates soon. Hope it is going well. Than you!

Hello everyone