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  • Hi, Mama. Welcome to our forums.

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    I suggest going to the subforum titled "General Discussion" at the top of the forum list and making a new thread for your post.
    Hello in common friends!
    Wondering about pros and cons for Trach breathing. My husband has bulbar unset since 4/2013. Breathing is mostly affected, still talking a little, Tube fed and has DPS. Can walk to bathroom with leg braces and walker but needs power chair for doctor appointments, etc. Any activity makes it hard to breath. Uses Trilogy and mask about 14 hours a day currently. He doesn't want to lay in a bed and burden his family but still doesn't know what to do. We aren't at that exact point yet but lining up options. If you are an ALS/CALS with direct experience with Trach, can you divulge what we are in for? Thank you tons.
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