Recent content by mamaoftwo

Yes, i saw him 3 yrs ago. Charming man, very kind. Hope you got on well today and got the good news you seek.

Hi VMD, did you ever get a dx? I am going back to the neuro next week. Dreading it of course, Wondering what your update is.

There is such a place.

Really? you cannot be serious. Simon Cowell a "low blow". Personally I think he is pretty hot and love his straight talking attitude. I am not alone in that - just ask the ladies of the forum. But he doesn't hold back and sometimes, the same goes for Wright. Wright, maybe you already replied...

I don't post much anymore but this I could not ignore. Enough Wright. Leave the girl alone. She is scared. You were not at her neuro appointment. You have not seen her, examined her - and by the way, even if you had, you are not a neurologist either. So quit throwing your toys out the crib and...

Saw you are online. How are you doing tonight?

AWESOME news. I am thrilled for you and most of all, for your kids. You must feel so elated. I cannot believe they ever said ALS if there was any doubt. You are one very lucky lady. God bless you and your family.

no new pm. try again.

Chest pain and palpitations Sammantha You may have an undiagnosed SVT - look it up. Tachycardia causes your heart to race suddenly and sometimes for extended periods of time. But it can happen at rest too. I have it. Was diagnosed 6yrs ago. I dont take meds for it - I chose not to - and I now...

I don't honestly know Lou. I am in the same boat for now - at least until my next emg which is coming up. But it seems there are people who never get a diagnosis, who just plateau. I don't know. But your neuro said no als, right? Have you seen a PT? They are very good at measuring weakness...

Maybe have one more to put your mind at ease. It has been 7mths so if nothing shows up then I would look elsewhere.

Lou - i dont have my diagnosis yet but i presented initially with fasics and atrophy w/out any real weakness. Now 2 yrs later, i do have weakness so i guess it is just another part of the waiting game. And remember that i am not alone in this, nor are you. There are other members here with...

nor can I ! there must be some normal variation just as some people can run fast and others cannot. Maybe? I would think that they are looking for very slow movement or an inability to move it side to side at all. It is important that your tongue sticks out straight and elevates in the midline...

Brian I don't have a diagnosis yet but expect one at next appointment - too much progression for them not to see something! I had no idea that they had changed your diagnosis from CIDP to PMA. When did that happen? You were one person on here who gave me hope for a treatable condition. I have a...

Jim - was your 3rd neuro a Nueromuscular speciaist? I ask because I would be more inclined to believe what your 2nd emg said, given that you were referred to him for an expert opinion. For what its worth, I have been there too. First emg was 'dirty' (performed by a physiatrist), 2nd by...