Recent content by MadCybertist

I’d say you should work on getting your health anxiety under control.

Why not just use GoodRX? It’s way less than that.

I don’t have the number offhand but it was with Biogen and found on clinicaltrials.gov. That’s why I said clinical trial. Is Tofersen readily available otherwise? We have 2 rooms downstairs we can make a bedroom. I don’t have a shower though on the first floor (3 upstairs haha). I do have a mud...

I was diagnosed with familial ALS secondary to SOD1 mutation. I begin Riluzole tomorrow and the ALS clinic is in the process of trying to get me into the Toferen clinical trial. I’ve spent some time getting my affairs in order, but the one remaining item is our house. It’s 2 stories and I...

Ask about radiation. With my dad we did radiation which helped him massively. They basically they did extreme radiation via essentially an X-ray type machine and put it up to his face to kill the salivary glands. Was a good success for him.

Not able to reply further. Seems it's asking me for $20 /month in order to make posts and/or comments more often than 3 days.

Hi folks. I was just recently diagnosed with MND. I had initially posted a thread here about a month ago, and then also had 2 really nice Reddit threads going. I'm going to copy over some of that content in a quote here as Reddit links are not allowed. In my follow up post it seems there are...

Hi all. I've been having some symptoms since 9/2021. They are progressively gotten worse and I'm currently having issues going up stairs. I would say things are early though for sure since I'm still able to walk relatively well. I'm not new to ALS, as my father was diagnosed in 2/2017 and passed...