macdonas

No not yet..the dreaded chair...I have bulbar onset... I think the feeding tube comes with not being able to eat and drink. So I would say bulbar pat are the first in most cases to get the feeding tube... Oh, believe me I have plenty of bad days..way more than I want . Life is a lot nicer if I can stay upbeat...I try.. Lin

Hi, good to hear from you. I am so sorry ...sometimes this life is just so hard..you have a lot on your plate.. I haven't fell yet...I am getting weaker in my legs also... My hands and arms is where I am losing so much muscle..everyday I find more things I can't do. Yesterday it was tying a bow for a birthday gift..I did it finally but with lots of perseverance ..today is a new day and I am finding what is positive in each day... Take care, hugs, Linda

Been off on stress leave. Renovated the bathroom and threw a party for my husband's birthday and to acknoweldge he is leaving his position. Not sure if trying to be ready added more stress or not. On the upside, his next work appointment will probably be a positive one for him given everything.

hi, i love to hear from and it i never mind if you are having a good day or a bad one. You can always tell me how you are feeling... Just know that. We are here to help each other at all times... Thanks goodness no matter how awful we are doing someone is having a better day and can cheer us up??? I am so sorry you and your husband are having such heavy trials to go through.. So vary sorry. Try real hard to think of what you can do and do it.. Mke good memories for the ones left behind and yourself to think about? Know that you are special and you are loved. Hugs to you today, Linda

Hi Sandra, It is so hard to know what to do? I wish i had an answer but i don't... I do know that with me at this time or stage,i would not be able to work. I get so tired by around noon that I have nothing left to give. This has been for a few weeks now. I hate feeling so weak.. Really hate it. So i guess what I am saying is how far along are yo ??? Maybe judge things by that? I try real hard to stay strong . i start out each day feeling strong but by noon I start feeling sorry for myself and wonder how long I have to live?? How many times I will see my kids and Gr. kids, my friends?? Everyone is so different ,hard to say. i just know that I am starting to know I have limitations and nothing i can do about it?
Every morning i think of what I do have and try to stay focused on those things. One day at a time!!!!! Big Hugs to you today, Linda

Hi the feeding tube is working great... I get lots more liquid now and i really needed it. I really got it just in time.. Hardly can eat anything now. Smoothie... How are you doing?

I've decided today that maybe a full plate is better than an empty one!

Macdonas
Thanks for the welcome. Just looking at your 'about me'. Looks like you have plenty on your plate. I know what you mean about this site. Seems like there are many wonderful people here who really care. It as already been so helpful and encouraging. Pleasure meeting you. God Bless

Hi, I am glad your let is doing better. So sorry about your husband 's job. Life isn't fair sometimes. I hope everythings works out... Hugs to you both, L

Hi, I am so sorry to hear about your leg. I have trouble with my right leg sometimes. Lots more a few months back... thanks for thinking of me. I really appreciate it. one week from yesterday and it will all be over with.. yippie Hugs to you, Linda

I have a new outlook this week. Everything is wonderful (relative to my world).

Hi, hope you are getting through the days ok. I know it is hard. For me I see the progression and i am hating it. I am getting better at taking it one day at a time and doing what I can do to make each day a good one. Good to hear from you, Hugs, L

morning Santra, So glad you are here on the forum. It really does help... hope your day is bright?? Hugs, L

Hi, how are you doing today? Thanks for your comment on my little Gr. daughter... Hugs, L

Hi Saundra, how are you doing? Good to hear from you... Thanks for the comment also. I have the best daughter in the world..L