Hi again Lynn
I am happy to share but would prefer to do it privately. If you have a certain number of posts you can use private message or if you have an email you don't mind posting I will absolutely email you. I think the number of posts for pm is 12 or 15
If you are considering Johns Hopkins for a "second opinion" in regards to an ALS diagnosis, there is an old thread here on these forums that dates back to 2007 where a PALS recounts her experience during a visit there seeking for a second opinion.
Here is the link: