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  • Hi again Lynn
    I am happy to share but would prefer to do it privately. If you have a certain number of posts you can use private message or if you have an email you don't mind posting I will absolutely email you. I think the number of posts for pm is 12 or 15
    If you are considering Johns Hopkins for a "second opinion" in regards to an ALS diagnosis, there is an old thread here on these forums that dates back to 2007 where a PALS recounts her experience during a visit there seeking for a second opinion.
    Here is the link:

    Hi Lynn
    Edited now that I know you read the original message. Let me know if you have questions

    I am sorry you have to be here but welcome
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