Recent content by Lynda

  1. Lynda

    PALS sleeping/napping in excess

    Dusty, I appreciate your comments. We have found that, on those days that he gets more sleep than is normal, he doesn't function as well. He is weaker and it's much harder for him to do anything. He definitely has those days that he overdoes it at work. Luckily, his co-workers get on his case...
  2. Lynda

    PALS sleeping/napping in excess

    Although I may make suggestions to him after doing research or the like, every decision is ultimately his as the patient. I did suggest he contact his ALS specialist about the excessive sleep though and he was going to do that today. He doesn't necessarily see the relevance (and maybe there...
  3. Lynda

    paying for equipment

    Thank you everyone for your valuable assistance. We were supposed to go to support group tonight, but Michael's having a really bad day and I'm having difficulty with the arthritis in my feet, so we'll unfortunately miss tonight's session. I was going to bring my laundry list of questions and...
  4. Lynda

    PALS sleeping/napping in excess

    He's actually recently diagnosed. Still goes in to work at least 4 out of 5 days. Fully ambulatory. Arm weakness and starting to have overall weakness. Only on one med (at work so can't remember which). This is why I'm so concerned. If he were well into the progression, I might not question it...
  5. Lynda

    PALS sleeping/napping in excess

    Hey guys, I'm very concerned about my husband's sleeping habits. He can literally sleep for 12 hours, then be up for an hour, then take a 4 hour nap. Is this typical with ALS? Today, he stayed home and I'm at work and I can't rouse him with the phone (the phone ringer is off in the bedroom)...
  6. Lynda

    paying for equipment

    Michael is still working, Laurie, so we are on Anthem, his insurance through work. He's fully mobile at this point. His arms have been highly affected and he has limited range of motion in one, better in the other and is very weak and has lost the most muscle tone in that area. Right now, we...
  7. Lynda

    I should have let everyone know earlier but...

    I'm so sorry for your loss. I'm glad that those last few moments were special for both of you.
  8. Lynda

    Edema

    I have idiopathic edema. I was wondering if you've tried compression stockings?
  9. Lynda

    Bad Sleep Habits

    My husband can now easily sleep 12-14 hours per day, sometimes with a nap, too.
  10. Lynda

    Cooler on wheels for work

    We actually went with the WalMart model. I'll post a link when I can (I'm at work!). Just arrived, so tomorrow will be hubby's first day using it for work.
  11. Lynda

    Documents

    If the PALS is still working, I would also include their HR personnel and contact info on the list.
  12. Lynda

    paying for equipment

    Thank you!
  13. Lynda

    paying for equipment

    There's a stickie called Equipment and Supplies. Within that is a link called "document" which is referred to as being updated often with new information. When I click on the link, nothing happens. Maybe I wasn't clear enough in my explanation. I appreciate your input. Thanks, Tillie.
  14. Lynda

    paying for equipment

    I went under the Equipment and Supplies stickie, and the "document" listed there does not load, so I was unable to gather information. So far, we have not yet had to purchase any ALS-related equipment. The first item on our list was a walk-in shower with seat, as showers seem to be where...
  15. Lynda

    Hello, it's my time to join

    Welcome to the group. As everyone else will say, we're sorry to meet you but glad you found us. ;) Your symptoms sound a lot like my husband's. He is also newly diagnosed. This group is chock full of some really excellent information. No question is stupid. No rant is held against you. Baby...
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