Recent content by Loverly

Hi Ernie, There are a few things that you can try if an oiling stroke (that’s what we call it) is irritating. First let me mention that there are aerosol lotions if she needs that for moisturizing. Typically, if a person receiving is ticklish the answer is to move more slowly and to penetrate...

Of course no one understands. It’s unfathomable and hideous. This group understands and really cares about your experience. Ask anything and everything. If you haven’t reached out, do find your nearest ALS chapter. The help and resources are invaluable. If your dad is a vet get the VA on board...

Yes, as I lay in bed last night I thought, “you don’t really know what you’re talking about. Better correct that in the AM!” Thanks.

Ha! I’ll take a look!

Gosh, we went thru a horrible period where a PT had Kathy doing isometric strengthening exercises, and they were exhausting. We realized that to regain her strength would actually take a miracle so we cancelled the therapy. I don’t think there’s any benefit to extra exercise, but definitely many...

I will do whatever I can, of course! Unless someone truly wants to leave their home, I planned to travel to wherever I can help. I can go to the hospital, hospice, SNF, whatever. Unfortunately, I’ve got all the experience. I will bring whatever is necessary with me. In the three years since...

Pics of you dressed as the Pope, or it didn’t happen! ������ Glad you’re home and hearty. Shame about the hospital’s lack of knowledge isn’t it?

One caveat for the future, some hospice organizations consider a bipap to be a life prolonging intervention and won’t take patients who use them. If that happens keep looking. Others will.

For my PAL, the face mask was irritating but necessary. We cut strips of flannel and placed them between the mask and her face. Also, on the bridge of the nose. Kathy got a kind of sore there from the mask.

Oh! Haha! Thought I was losing it! Thank you! I would add for anyone unsure about contacting me, that I have been working with a chiropractor and at a spa, where they charge $100+/ hour for my work. I’m pretty good at it. 😁 I’m also a retired teacher. I’ve been through multiple background...

Thank you. I thought I had posted this in the CALS page. My apologies for posting in the wrong forum!

I’m glad I turned up in time to hold this space for you and Matt. Life is a god awful thing, isn’t it? I love you. I love you. I love you. That’s what I will be thinking when I say your name over the next few days and weeks. Jennifer.

Hi everyone, former CAL, Jennifer, here. I’m still living in Orange County, CA and I’ve become a licensed massage therapist in the last two years. I’d like to offer massage to anyone in the area who needs it, PALS or CALS, no charge, of course. I contacted ALS twice, but haven’t had any...

Old habits die hard! 4 years after my divorce my ex-husband and I took our son to college together. I called him, "honey" at least 5 times. On thing I thought I'd add is that our social lives go belly up when we enter this rabbit hole. I am mourning, but I'm also lonely for my old friends. Now...

hmmmm It could be a kind of candida (yeast) from moisture being trapped there. I make my own yeast treatment that i think is more gentle than OTC antifungal. It's coconut oil mixed with a few drops each of lavender and rosemary essential oils. The coconut oil is very melty. You can just mix it...