Recent content by Lovely Laura

  1. Lovely Laura

    Vitamin D

    I have not been diagnosed with ALS but as soon as my neurological symptoms began I was advised by the Neuro to start taking Vit D daily along with B complex and folic acid. He mentioned that this were all important for brain and cellular function. Any one no more about the benefits of CoQ10 at...
  2. Lovely Laura

    Alcohol and tobacco, makes ALS worse?

    I have read that smoking increases the risk of ALS but who knows what kind of study that came from. I agree with the majority that things should be done in moderation. If you are continually getting lung, throat or sinus infections or have trouble breathing you may want to change your habits...
  3. Lovely Laura

    Hey Heidi, I appreciate your reply. Have you seen the documentary "under our skin" very...

    Hey Heidi, I appreciate your reply. Have you seen the documentary "under our skin" very interesting in terms of why Lyme is such a political disease. I to believe that perhaps many neurological disorders are actually associated with Lyme but I am no expert ;) I don't imagine I will have a...
  4. Lovely Laura

    Hello Kelly, Seeing you were diagnosed with Lyme, I have a question for you...did you ever, or...

    Hello Kelly, Seeing you were diagnosed with Lyme, I have a question for you...did you ever, or have you ever heard of anyone with Lyme, who has suffered from urinary incontinence? FYI I,, like many others, landed here when my symptoms first began ( around 7 months ago) and briefly entertained...
  5. Lovely Laura

    ALS Survey - ALS Type and Sympt. - ALS diagnosis - Progression

    Re: Survey I realize these posts are rather dated but wanted to add my symptoms list somewhere for reference. This seems like a good place :) I do not yet have a DX 1) Symptomps prior to Dx March 2010 : I woke up one morning feeling ill and very tired-didn't sleep well during the night...
  6. Lovely Laura

    A Fresh Perspective

    This is a wonderful post. Love your positive attitude! :) Hope you have been able to maintain it, All the best Laura
  7. Lovely Laura

    One in a Crowd

    Great post Roderick! :) Wishing you all the best
  8. Lovely Laura

    Anyone been involved in a sleep study

    Thanks Alex..as I mentioned previously I feel less and less that my problems are due to ALS, I just don't fit the common progression...at this point I feel I am more likely to be suffering from anything but..I also know that many of the PALS here have been through similar situations and have a...
  9. Lovely Laura

    Anyone been involved in a sleep study

    Hey Lydia, Thanks for sharing. I am due to see a movement specialist (neurologist) at some point, haven't had a call since the referral. I was already told by a local Neuro that I didn't have Huntinton's ,Parkinsons nor did she "think" I have MS. That was very early on. She blamed my...
  10. Lovely Laura

    The..I hate it when...thread

    I hate it when I have to pass gas...why..because I worry that might not be the only thing I pass :( luckily it has only happened to me a couple of times-I usually only have to worry about urine leaking
  11. Lovely Laura

    Thinking of you, hang in there! We all get scared and even those of us with people around us...

    Thinking of you, hang in there! We all get scared and even those of us with people around us feel alone... my family has this crazy belief in doctors that if there is something seriously wrong with me they would have known it right away...I'm sorry but my general practitioner is not that smart...
  12. Lovely Laura

    Hello Heidi, first off I am sorry to hear you have received a dx of ALS. I happened to come...

    Hello Heidi, first off I am sorry to hear you have received a dx of ALS. I happened to come accross a few of your post and wanted to ask you a few questions. I understand your naturalpath is saying you have Lyme based on clinical findings. I recently tested negative for Lyme disease but it...
  13. Lovely Laura

    Anyone been involved in a sleep study

    Hopefully you are able to find something that helps him sleep Pepper. I know for me not sleeping has affected me in many ways. It can make me irritable, cause a lack of concentration among other negative things. My best to you both :)
  14. Lovely Laura

    Anyone been involved in a sleep study

    Thanks for the information. I am not currently on any medication, I was on Steroids in the begining, antiseizure meds and a couple of months ago my doctor had me try Lyrica but I wasn't comfortable taking something that they weren't sure how it worked when I didn't even yet know what was wrong...
  15. Lovely Laura

    Anyone been involved in a sleep study

    Hello Alex, Hope you are finding answers along the way..I appreciate your input. I wake up numerous times within the night and have felt like I can't move on occassion or one of my limbs (arm or leg) would be numb even though I am completely alert. For example, this morning I awoke and my...
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