Recent content by Louie

Thanks Nikki...Its hard to accept a clean emg when Ive read from other posts that a loud pop sound with a high wave led to their dx ...also my blood work showed very low white blood count (2.8) and neutropenia ((1) ...not good I haven’t been sick in ages. This constant twitching and tightness in...

Hi guys it’s been a long wait couple of weeks but today I finally saw the Neuro he did strength test and that looked good...he did note some atrophy on my right elbow but put that said he wasn’t concerned about it and finally did the emg which was weird. When he put the needle in my tricep where...

Thanks for your support guys. It’s not easy asking you questions given what you’re going through. But unfortunately the appt with my Neuro and ortho is 3 weeks away. My mind is a dangerous place to be in right now. It didn’t help that my Physio yesterday said I might have tennis elbow but he...

Hi Tillie I’m seeing Dr Schwartz at Southern Neurology at Kogarah...He did the emg last year...he could see the fasics but there was no atrophy or weakness then only sporadic twitching in the right tricep area. I’m only stressing as the atrophy in the elbow is very visible to anyone I ask...

Thanks so much for replying guys... It took me a year to overcome that I had bfs .Have just ignored twitching even though they are so widespread now But it’s the sudden atrophy that has me fearing otherwise...I’ve searched all the literature and can’t find any other disease that causes both...

Hi my name is Louie I’m from Sydney Australia I’m 45 yr old with 5 kids. I’ve been following this forum for a year now and envy the the way those dx with this disease deal with it. If I have what i believe I have I’m afraid I will totally lose whatever mind I have. 14 months ago I got...