Recent content by Lou

  1. L

    I'm Hopeless with Computer Al

    Hi Al, I don't know any other way to respond to you. My computer is giving me a headache- mainly because I am not very savvy with it. Your private message seemed to come with attachments so I deleted it- which is why I am writing here. I think you explained how the private messages works. It...
  2. L

    Caregivers only... You and your PALS

    Oh Beaner, You have just said it all for me- all my unspeakables. It really does help to hear others. It helps too, Al, that you can speak for my husband, things he won't say he understands but must. That has been my big worry - that all I'll be left with are the bitter words and frustrations...
  3. L

    Did anyone have Fasciculations before Atrophy?

    My husband had fasciculations before athrophy. He started with a terrible cramp in his arm then his leg and then months later he had the fasciculations and I knew what he had. I was a nurse but I had never seen symptoms like his but I just knew it was ALS. About 6 months later he was diagnosed...
  4. L

    Caregivers only... You and your PALS

    Hello jimercat, Thank you for answering. I did see where I got on the thread after I asked the question. I maybe meant how do I start a thread? I do have Community Access help otherwise I could never handle my husband. He is 6'1" and 215 lbs and totally unable to move. My children give what...
  5. L

    Caregivers only... You and your PALS

    Oh Thank you! I am new to this forum and I started out complaining and then felt really guilty. I thought everyone would hate me. My children do not want to hear my fatigue and depression and have threatened not to talk to me if I can't be more positive. It is four years now and although things...
  6. L

    Dementia and ALS

    Hi Leslie, I am not as young as you. I am 60 but my husband has had ALs for 4 years. He cannot move and doesn't go out further than the yard in his wheelchair. He has been really good about this but he won't talk about anything meaningful. It has been horrid for me and our children to watch. My...
  7. L

    New? Introduce Yourself - Say Hello

    Hi, I'm new. I'm Lou. My husband has Als . He has been ill for 5 years[4 since diagnosis] We have three grown children. I live in a big three storey house in the country where we have renovated a sunroom for my hushand. It is a lovely setting but I am isolated and becoming too tired to take...
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