Hi Kim...
I'm so sorry you didn't feel as if your concerns were properly addressed. I understand exactly how you feel.
I vacuumed a few minutes ago and am now having twitches in my right upper arm, which is the arm I used to push the vacuum. I never had twitching after vacuuming before all this started. The other twitching continues randomly. I know I have decreased endurance and decreased strength, but as I've been a nurse for 25 years now, I was very strong physically and was able to spend 12 hours on my feet without batting an eye. So the difference, while obvious to me, is imperceptible to physicians. As a nurse, I'm also aware that people with health anxiety are often viewed through a different lens. I'm ashamed to admit that I've been guilty of that myself.
I have a strong suspicion that it's only a matter of time until I/we end up in the "newly diagnosed" section. I pray i am wrong on both counts.
Keep in touch!
April