Recent content by Lory

Thanks so much for the reply. Does the eye gaze that your sister uses require blinking to work?

Hello - my dad was diagnosed with ALS almost 3 years ago. It began in his hands and now he is unable to move except turning his head and twitching fingers. His voice is fairly strong but starting to become affected. I've been reading that eventually, if he loses the ability to speak, most...

I just watched the video link. It was really great; you are so brave :)

Thank you so much!

I actually just posted in another section about progression- that's really comforting to know about the breathing. Thank you. :)

My dad was diagnosed with als about one year ago, he is 67. His first symptoms were hand weakness and trouble with fine motor things like buttoning. His doctor at the als clinic said he was diagnosed on the early side, which I guess is a good thing? The biggest question my dad has had since...

Thanks so much for the replies. I know my dad wants to be at the wedding, but I don't think he cares too much one or or another about walking me down the aisle. I would be fine with him in a wheelchair as long as he is comfortable. I wish there was more information about charting the...

My father was diagnosed with AlS in early 2013, limb-onset. Started with weakness in his arms. Fast forward a year, and he has lost about 80% of the use of his arms. His voice and swallowing are still very strong, and legs are strong. He says he has been having fasiculations in his legs for...

My father was diagnosed about 9 months ago, limb onset. He has extremely limited use of his arms now and within a few months will have no use, the doctor is predicting. My brothers and I are thinking about getting him an iPad mini for Christmas, as it's something he's wanted for awhile. I...

I would love any stories and advice about this, as it's a big unknown for me. For PALs who are in wheelchairs, how often do you typically need to transfer/reposition yourself during the day? My mom is going to be my dad's primary caregiver- she's in good health but not big and super strong...

thanks so much for all the replies. It has really given me some peace of mind. :)

I have 2 younger brothers but they both live out of state also. One of them also offered for my parents to come and live with them. They just really want to stay in ohio. I just wonder if my mom is really prepared for the physical and mental stress being a 24/7 caregiver sounds like it is. I...

Hi everyone. I have been lurking here for the last few months and have gotten so much information from reading everyone's posts. My father was diagnoses with limb-onset ALS in March. He has fasiculations in his legs but is still able to walk completely independently. He has limited use of of...