lornajean45

Brittany
You know I'm really not doing fine,your message about your mom just really hurts!!I'm so damn mad at this thief ALS.Tell her it's been an honor to have crossed paths with her and to share some of the pain.Also she is blessed to have a family that loves her so much!!I know I am I have a house full of people that love me.
But still it can be very lonely at times being ill. tell her shes not alone that God is holding her hand and to hang on to that!!And that love will get her through.---Denny

Brittany
tell your Mom I'm doing fine.Also that I'll keep her in my prayers not just today,but until I meet her in Haven! I'm so sad that she progressed so fast,give her a hug for me.--Denny

Lorna
just wanted to say hi,hope your're having a good day--- Denny

Hi Lornajean,
I'm sorry about the progression. You'll gain weight with the tube. My little 4 year old nephew has a g tube and does very well with maintaining his weight .
So far my speech is awful but my swallow is ok. It takes me a while to eat because my chew is off.
I'm thinking of you. Don't let his disease define you. We have families that love us so we need to do whatever we can to be here for them.
Keep in touch,
Susan

Hi Lorna
This disease has really taught me that I'm not this body, and you are not yours.We are spirits inside and for some reason we were meant to suffer in these bodies.Looking at your picture you are very pretty and I'm sure you still are!I'm sure your husband thinks you are beautiful and your daughters do too!And by the way you write it sounds like your beautiful on the inside too!!
Another lesson I got big time is that nothing matters except the love we give and recieve.I tell my wife I love her not just today but forever!!!Let the love in you show anyway you can and by the sounds of things at your house they love you very much.
It was good to hear from you,I wish you peace in anyway you can find it!!---Denny

How are you doing pretty lady?

Lorna
hope you are able to smile today!Wish you some joy in whatever you and your family are up to.---Denny

Lorna
I'm sorry for all you're pain lately and its good to here from you!
I hope that the love and care you recieve from you're family makes you have some peaceful thoughts!
For me accepting all these changes is a monumental task!and its the thoughts about being different than you were before that make this oh so hard!!
For me I struggle everyday with this,I never thought I would care about the way I looked.But I found out I did.I guess I'll have to get over it just like all the other losses.
My wish for you today is peace in what ever way you can find it!!
For me that comes in something as simple as a hug from my daughter or my wife,and i mean a deep feeling of love for them!
I also have two adult sons and I hang on to them too!!
So make the most of this day if you can and I hope you feel comfort and peace---Denny

Lorna

I just read this tag line from Joni though you would appreciate it (FYI im still waiting for diagnosis))

Every tomorrow has two handles, the handle of anxiety or the handle of faith
Joni

Hi Lorna,
Hope you're doing ok just wanted to say hello!

Lorna
When I read your message I had to sit here and think for a while,what could I say to make you feel better even if it was just for a moment ,something to hang onto!The only thing I can say is for me it's trying to let go and relying on the mystery of faith.I do'nt mean give up! try to eat more just for them that might give you a lift.
I know I cry everyday in my wifes arms I sometime feel like I'm less of a man.The thought of leaving her is unbearable.I guess I'm lucky my youngest is 23 but I can tell you I still do'nt want to miss out on his future events.
I often wonder what a person could have done to deserve this, I think i'd rather be hit by a truck!!!
My biggest problem is my legs are going I don't know how much longer I'll be walking " oh boy "
So I hope just letting it out in words helps you and remember your not alone, go ahead cry do what ever it takes to get through this day!! and again remember your not alone.message me anytime--Denny

Hi Lorna
I read what you posted and my husband self diagnosed himself too. He woke me one night and said "I have ALS". I was working the next day and I didn't believe him. So sorry to say he was correct. Hope you and your girls can have a joyous holiday. We are looking for our son to come home from college soon for the Christmas break.

Lorna
I read your posts and I understand exactly what you are thinking ,I'm so sorry for all of us and I looked at your family pictures and it breaks my heart to know that you're suffering from this disease.And you're perfect strangers!
And all that does is make us sad and stuck in this gloom!
So I 'll tell you what I'm going to do, all that we can do in this situation, pray hard that God will help us pals. Denny

Hi Lorna, I just read your post. I was a former Speech Therapist that worked with Dysphagia people. (ironic that I'm losing my voice) Anyway, you might want to get a Barium Swallow study. This will show if the food is being swallowed safely. In the meantime if your having trouble chewing and swallowing, try to chop the food finely. Alternate sips of liquid and tuck your chin to your chest when swallowing. Another trick is to make pudding with heavy cream. This will bump up the calories.

Hi,
I just want to come by and say Hi, it sounds like we have the same symptoms, I have little speech and my left side is weak. I have a 12 year old daughter and a wonderful husband. If you want, there is a thread come for tea. A bunch of us log on daily and just chat. It's lighthearted and fun. It helps us with being normal. Most of us have kids on there too.
Take care,
Susan