Lolita
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  • Sorry you have to wait so long. It is usually a couple months out to see one here in the states. Keep me posted how you are doing, and if you get the spinal tap. I wish you were able to get in sooner...with symptoms of the sort, I don't understand why doctors have us wait so long. I will be thinking of you...
    Hi Lolita I have seen two neuros but not yet a neuromuscolar specialist. It was found that I have very brisk reflexes in all four limbs and widespread twitching...some blood tests MRI and EMG were done....they were all clear so the neuro said we have to wait and see, if things progress he want me to repeat all the test and have a spinal tap. Things are progressing and I'm scared, I have to wait until March to see a neuromuscolar specialist but I really don't think I'll be alble to wait such a long time.
    Hi Lolita I read you're in this Limbo like me. I'm also a mother and really scared about this thing I'm going through.....it's definitely not a good moment for us but finding people in my situation make me feel less alone. Hoping things will be fine for both of us.
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