Recent content by lola64

Hugs to you on this anniversary hon.. I'm sorry that you're going through all this; I hope you're managing alright today. The grief tends to hit you at the oddest and most inopportune of times.. in many ways it isn't what you expected it to be, is it?! Sending warm thoughts your way in that you...

Hi Laurie- I'm glad you found this forum, it seems to be the kind of place you need right now with like minded thinkers facing similar dilemmas and providing incredible support. You will draw a lot of support from the amazing people on this forum. This is actually my first post on the forum...

Hi again- thank you again for your suggestions. This is where we keep hitting that large obstacle. My parents are of the variety to refuse outsiders from coming into their home at all costs. I have no doubt that if I were to go ahead and line up help anyway, they would not open their doors to...

Thank you mare and indigo... I appreciate your article and your comments. I understand what my mother is going through.. however, I'm not sure where to go from here anymore. So many times I have tried to sympathize, help more, give her more breaks.. but she sees it as if I am doing less and...

Hi all, First, I wanted to wish you all a Merry Christmas. I hope everyone has a happy, peaceful holiday season out there. I have a question.. and a few comments about caregiver burnout. I think my mom is finally there. The short version of the story is this.. dad has been diagnosed for almost 3...

Hi everyone, I'm here sitting at work, and feeling a little overwhelmed. Figured I'd come here to get out a few things so I don't take it out on unsuspecting co-workers! I feel so overwhelmed with everything these days.. I feel so completely stupid at work, my mom and I are the primary...

Hi all, I have a question for anyone that knows: I have done a lot of research over the last two years, considering these three 'categories'... it's been two years and several tests and trials, as well as several visits around the country to various specialists.. however it seems as though the...

thank you ireland... sooo good to hear you put in words how I think we all must be feeling, but somehow are afraid to say! It's so true, you hit the nail on the head when you said it feels like you've made decisions, sacrifices, that you've been somehow hard done by, that you've had to put your...

Hi Caroline- Oh, honey, I'm with you. I'm 28 and pretty much feel the same way this week with my Dad this week! :) I don't know how to draw strength.. it comes and goes, and we just do what we have to do. But please don't feel guilty for thinking the things you are thinking: it isn't right or...

thank you, both of your responses are very helpful.. I think it would be interesting to start a thread to see just what each person's personal limits are/ were, and then to see how we surpass them and surprise ourselves, only to make previously apparent 'obstacles' turn into an everyday...

Does anyone have any tips on how to get my parents to finally just give in and accept homecare or hospice? It's been close to two years and they have pushed away many friends and family with their inability to give in and accept outside professional assistance. Many of the friends and family who...

refusing to accept help, and unreasonable expectations! hi there, i just wanted to let you know you're not alone.. honestly through dealing with Dad's limb-onset 'ALS' (both parents somewhat in denial), though the illness and everything that goes with it has been brutal to deal with, it's truly...

oh my goodness, can I ever relate to this thread!:D To keep it simple, (I can always tell when the conversation turns and when the questions start coming!) whenever someone asks about Dad and how he's doing, I usually just (flinch a little on the inside because I never know how to answer it...

I am reaching an 'at the end of my rope' moment, so I thought I would just defuse here..please excuse my flurry of typing. My dad is progressing throughout the ivig treatments, rapidly (for those of you who don't know the background, he was initially diagnosed with ALS last summer, then it was...

Hi Pam- sorry for the delay in replying, I was out of town there for a week or so. Dad just finished the second day of his third treatment (round) today. So far, he says he's noticed a small improvement in the size of the muscle of his right hand between his thumb and index. He's also on an...